Abstract

BackgroundTo create a self-reported, internet-based questionnaire for the assessment of suicide risk in children and adolescents.MethodsAs part of the EU project ‘Suicidality: Treatment Occurring in Paediatrics’ (STOP project), we developed web-based Patient Reported Outcome Measures (PROMs) for children and adolescents and for proxy reports by parents and clinicians in order to assess suicidality. Based on a literature review, expert panels and focus groups of patients, we developed the items of the STOP Suicidality Assessment Scale (STOP-SAS) in Spanish and English, translated it into four more languages, and optimized it for web-based presentation using the HealthTrackerTM platform. Of the total 19 questions developed for the STOP-SAS, four questions that assess low-level suicidality were identified as screening questions (three of them for use with children, and all four for use with adolescents, parents and clinicians). A total of 395 adolescents, 110 children, 637 parents and 716 clinicians completed the questionnaire using the HealthTrackerTM, allowing us to evaluate the internal consistency and convergent validity of the STOP-SAS with the clinician-rated Columbia Suicide Severity Rating Scale (C-SSRS). Validity was also assessed with the receiver operating characteristic (ROC) area of the STOP-SAS with the C-SSRS.ResultsThe STOP-SAS comprises 19 items in its adolescent, parent, and clinician versions, and 14 items in its children’s version. Good internal consistency was found for adolescents (Cronbach’s alpha: 0.965), children (Cronbach’s alpha: 0.922), parents (Cronbach’s alpha: 0.951) and clinicians (Cronbach’s alpha: 0.955) versions. A strong correlation was found between the STOP-SAS and the C-SSRS for adolescents (r:0.670), parents (r:0.548), clinicians (r:0.863) and children (r:0.654). The ROC area was good for clinicians’ (0.917), adolescents’ (0.834) and parents’ (0.756) versions but only fair (0.683) for children’s version.ConclusionsThe STOP-SAS is a comprehensive, web-based PROM developed on the HealthTrackerTM platform, and co-designed for use by adolescents, children, parents and clinicians. It allows the evaluation of aspects of suicidality and shows good reliability and validity.

Highlights

  • To create a self-reported, internet-based questionnaire for the assessment of suicide risk in children and adolescents

  • The STOP-SAS is a comprehensive, web-based Patient Reported Outcome Measures (PROMs) developed on the HealthTrackerTM platform, and co-designed for use by adolescents, children, parents and clinicians

  • In this study, which is part of the STOP project, we describe the development of a self-reported, web-based questionnaire for assessing suicide risk in children and adolescents, which aimed to capture the different elements of suicidality

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Summary

Introduction

To create a self-reported, internet-based questionnaire for the assessment of suicide risk in children and adolescents. The age range with the greatest risk of suicidal behaviour is adolescence and early adulthood [2, 3]. Previous studies have shown a weak but significant risk of self-harm and suicidal ideation in adolescents treated with antidepressants [6, 7]. There is a need to develop measures to assess suicidality in the child and adolescent populations given the specific stresses they experience at this age. Since suicidality remains a delicate topic, it can be argued that a proven web-based health monitoring platform could be useful in this population, as they provide a space for honest responses to sensitive topics

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