Developing and Evaluating Personal Health Records for Adults with Learning Disabilities

Abstract

This article argues for the introduction of patient‐held health care records for people with learning disabilities. The evidence reviewed demonstrates that people with learning disabilities have more health care needs than other adults in society but receive less health care than others. The rationale for implementing hand‐held records is considered from three perspectives: a consumer point of view, an analysis of how personal health profiles can help to overcome existing barriers to health care and the existing evidence. The initial experiences of introducing personal health records are described.