Developing and evaluating a formal care decision‐making intervention for African American parent‐adult daughter dementia dyads: A mixed‐methods study

Abstract

AbstractBackgroundAfrican American older adults are suggested to be two times more likely to develop Alzheimer’s disease and related dementias (ADRD) compared to non‐Latinx White older adults. As a result, there is a need for more African American caregivers. The largest group of caregivers of African American persons living with ADRD, African American adult daughters, must navigate decision making related to formal care. Formal care—paid health care services for older adults usually associated with an institution— is important in the treatment of ADRD and maintaining quality of life.MethodGuided by the NIA Health Disparities Research Framework, Black Family Social‐Ecological Context Model, and Superwoman Schema, this presentation will describe a clinical trial that is designing a culturally tailored prototype intervention to support the formal care decision‐making process for African American persons living with ADRD and evaluating the feasibility and efficacy of the prototype intervention. The prototype intervention focuses on both members of the dyad’s quality of life as well as formal care utilization by the African American person living with ADRD. The design process will recruit 76 African American dementia dyads (70 dyads for quantitative and qualitative data collection to aid in the development of the prototype intervention and 6 dyads to use design thinking approaches to develop the prototype intervention) and will be tested with 20 African American dementia dyads using a pretest posttest design with two follow ups at 1 month and 3 months post intervention.ResultData will be presented regarding factors influencing the feasibility of implementing a dyadic intervention as an early‐stage investigator. We will focus on the planning process (e.g., IRB approval, study setup, and project management), recruitment strategies (e.g., recruitment videos), recruitment challenges (e.g., consent and eligibility), and mutual engagement of both members of the dyad.ConclusionIn the early stages of planning and recruitment of dementia dyads, there are challenges and key strategies to consider when conducting a dyadic clinical trial as an early‐stage investigator.