Abstract
BackgroundDiagnosis of perinatal anomalies is a stressful experience that can negatively affect mothers, families, health-care systems, and societies. Perinatal palliative care (PPC) is a new development in maternity services which focuses on emotional, spiritual, social, and symptom management and provides care for women and families with fetal anomaly diagnosis. Therefore, this study aimed to develop a service package for women with fetal anomaly diagnosis in socio-cultural context of Iran.MethodsThis research is an exploratory mixed methods study with the qualitative-quantitative sequencing design that consists of four sequential phases. In the first phase, following a qualitative approach, the researcher will explore the needs and experiences of women with fetal anomaly diagnosis, their families, health care providers and policy-makers. At the second phase, based on the review of the literature, Program, guideline, service package and protocol for care of women and their families after perinatal anomaly diagnosis will be identified in other countries. In the third phase, recommendations from qualitative phase and literature review will be combined, the initial protocol of the palliative care service package for perinatal anomaly diagnosis will be identified and prioritized. In the fourth phase, the opinion of experts about this service package will be collected by using RAND/UCLA Appropriateness Method technique and the applicability of the service package’s recommendations in clinical settings will be determined.DiscussionThe results of this Mixed Methods study are expected response the needs and experiences of the women with perinatal anomaly diagnosis being met in the socio-cultural context of Iran and a service package for palliative care of these women developed.
Highlights
Diagnosis of perinatal anomalies is a stressful experience that can negatively affect mothers, families, health-care systems, and societies
Plain English summary Pregnancy with fetal anomaly diagnosis is a stressful experience with impacts on individuals, families, healthcare systems, and societies
The opinion of experts about this service package will be collected by using Research and Development (RAND)/University of California at Los Angeles (UCLA) Appropriateness Method technique and the applicability of the service package’s recommendations in clinical settings will be determined
Summary
Diagnosis of perinatal anomalies is a stressful experience that can negatively affect mothers, families, health-care systems, and societies. Parents deciding to continue pregnancy following diagnosis of fetal abnormality experience grief, high levels of anxiety and depression during pregnancy, worries about the status of continuing pregnancy, dangers of planned surgical treatment, status of the baby after birth, and the care of other children during the period after birth [11, 13,14,15,16] They need access to the information or services women’s for decreasing fear, stress and anxiety and facilitate coping with the fetal anomaly diagnosis as they continue their pregnancies and are prepared for the birth of their children [11, 17]. Perinatal palliative care is a new development in maternity services that focuses on physical, emotional, psychosocial, social, and spiritual needs of parental and families during the pregnancy, childbirth and postpartum period when a fetus or a newborn has an identified anomaly [19, 21]. It is important for palliative care policy makers to explore the needs of women, family, and staff, how to best deliver effective care, and how to design and implement effective public policies [24]
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Disclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.