Abstract
Introduction Post-stroke fatigue is common and is one of the most distressing symptoms after stroke. It has a negative impact on physical, social and psychological functioning; it is also associated with poor outcomes and increased mortality. The effective management of post-stroke fatigue is therefore regarded as a clinical priority. Method This study will use a mixed-methods design with three overlapping phases. Phase 1 will be a survey of existing fatigue management within the United Kingdom. In phase 2, interviews and focus groups will be conducted with stroke survivors with fatigue, carers and clinicians to determine strategies used to manage fatigue successfully. In phase 3, data from phases 1 and 2 will contribute to the co-design of a fatigue management programme with the NotFAST2 study Patient and Public Involvement group. This will be further refined through subsequent focus groups, which will include those with fatigue associated with other health conditions. Results Survey data will be analysed using descriptive statistics. Interview and focus group data will be analysed using a framework approach. Conclusion Post-stroke fatigue requires a comprehensive management programme necessitating input from key stakeholders. A post-stroke fatigue programme will be developed which will be tested in a future randomised controlled trial.
Highlights
Post-stroke fatigue (PSF) is common and is one of the most distressing symptoms after stroke
Post-stroke fatigue (PSF) is an ‘overwhelming feeling of exhaustion or tiredness’, which is not related to exertion, and which does not typically improve with rest (De Groot et al, 2003)
PSF is common, and affects 50% of people after their stroke (Cumming et al, 2016; Hinkle et al, 2017). It is distressing for the stroke survivor (Van der Werf et al, 2001), linked to poor outcome such as disability, depression and lower quality of life (Lerdal and Gay, 2017), increased mortality (Glader et al, 2002), and contributes to significant carer burden (Mandiliya et al, 2016)
Summary
PSF requires a comprehensive management programme necessitating input from key stakeholders.
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