Abstract
BackgroundFamily caregivers are critical partners in the plan of care of people with disabilities. The study aims to demonstrate the factor structure and internal consistency of the Caregiver Burden Inventory (CBI) among the studied caregivers of disabled persons and to determine the effects of patients’ and caregivers’ characteristics on the burden and its dimensions.MethodsA cross-sectional study among 260 family caregivers of disabled patients was carried out in a randomly chosen rural area, Minia, Egypt, 2019. Exploratory factor analysis (EFA) was conducted to determine the factorial validity of the CBI. Multiple linear regression was used to identify the significant factors affecting the burden.ResultsFactor analysis resulted in a five-factor solution using 20 items (four for each dimension) accounting for 72.7% of the total variance. The CBI and its dimensions showed high internal consistency (Cronbach’s alpha value > 0.70). Education of caregiver, family income, mental impairments, and mixed disabilities were significant predictors of total CBI burden.ConclusionsCBI is an effective multidimensional measure of the caregiver burden of disabled subjects. Caregivers experienced a distinct level of burden that is determined by caregiver and care recipient characteristics. Therefore, support and individualized counseling services should be optimized.
Highlights
Caregivers are critical partners in the plan of care of people with disabilities
The purpose of this study is to demonstrate the factor structure and internal consistency of the Caregiver Burden Inventory (CBI) to be used among caregivers of disabled persons in Minia, Egypt and to determine the associations of caregiver burden and its different dimensions with various care recipients’ and caregivers’ characteristics
Most of the participants consist of parents (62.6%) of the disabled person, and the duration of caregiving ranged from 1 year to 40 years with a mean of 14.3 ± 9.9 years
Summary
Caregivers are critical partners in the plan of care of people with disabilities. Disability is a dynamic, multidimensional, and diverse public health issue of increasing importance and rising trend [1]. Disability rates are increasing due to many factors such as wars, aging population, increasing poverty and illiteracy, upward rise in chronic health conditions, and weakness of infrastructure of services [5]. In Egypt, disability rates are reported to be very low Ghazawy et al BMC Public Health (2020) 20:1156. This may be due to the method of data collection, starting with the understanding or definition of disability, the method of data collection, and/or societal or cultural attitudes (e.g. tending to hide disability in public). The major causes of disability in Egypt are congenital abnormalities, followed by injuries/accidents, old age, epidemics, and other diseases, and birth-related conditions [8]
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