Abstract
BackgroundThe increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. Most postdiagnostic services focus on the condition and the person with dementia with limited attention to the caring spouse or partner. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia. This couple management guide is delivered in the form of an app, DemPower.ObjectiveThis study aims to investigate the feasibility and acceptability of DemPower and to assess the criteria for a full-integrated clinical and economic randomized control trial. DemPower couple management app will be introduced to couples wherein one partner has dementia.MethodsThe study will recruit 25 couples in the United Kingdom and 25 couples in Sweden. Couples will be given 3 months to engage with the app, and the amount of time taken to complete the guide (can be <3 or >3 months) will be reviewed. A set of outcome measures will be obtained at baseline and postintervention stages.ResultsThe proposed study is at the recruitment phase. The DemPower app is being introduced to couples from consultation groups at a pretrial phase for identifying any bugs and exploring if any navigation challenges exist. The feasibility testing will begin in April 2018.ConclusionsThe study will determine how much support couples need to engage with DemPower and whether or not they make use of it in their everyday lives. If there is support for app use, a future study will assess whether it is superior to “usual care.”Trial RegistrationInternational Standard Randomized Controlled Trial Number (ISRCTN): 10122979; http://www.isrctn.com/ISRCTN10122979 (Archived by WebCite at http://www.webcitation.org/70rB1iWYI)Registered Report IdentifierRR1-10.2196/9087
Highlights
The prevalence of dementia is rising globally with increases in the average age of the world’s population and is estimated to reach 131.5 million by 2050 [1]
A well-defined approach needs to be adopted to manage the implications of dementia on societal systems and organizations, including the wellbeing of people living with dementia and their relational networks [1]
The current work program (6) is centered on the lives of couples who live together at home, where one partner has a diagnosis of dementia
Summary
The prevalence of dementia is rising globally with increases in the average age of the world’s population and is estimated to reach 131.5 million by 2050 [1]. In the United Kingdom and Sweden, two-thirds of all people with dementia are aged over 80 years [4,5] and more than 50% live alone at home or with their care partner [6,7]. The financial costs to health and social care that are attributed to dementia are likely to continue to increase in future years unless effective measures are undertaken to improve public health [4,9]. The increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia This couple management guide is delivered in the form of an app, DemPower. If there is support for app use, a future study will assess whether it is superior to “usual care.” Trial Registration: International Standard Randomized Controlled Trial Number (ISRCTN): 10122979; http://www.isrctn.com/ISRCTN10122979 (Archived by WebCite at http://www.webcitation.org/70rB1iWYI) Registered Report Identifier: RR1-10.2196/9087
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