Abstract
78.5, 56.2% female, 18.9% black). The ICG-R mean score was 44.5 (SD 9.5), and varied from 11 to 55 (lower score indicating worse grief). A multivariate linear regression found the hospice primary caregiver’s perception that the patient’s wishes were not followed was associated with a 4.7 point lower grief score. Other measures associated with worse grief included concerns with coordination (4.1 points lower, 95% CI -7.0, -1.2), lack of spiritual support (3.7 points lower, 95% CI -6.9, -0.42), and no prior experience with hospice (2.7 points lower, 95% CI -4.6, -0.74). Persons with a formal advance directive had improved grief score by 2.3 points (95% CI, 0.2, 4.4). Conclusions. Primary caregivers’ prior experience with hospice and their perceptions of concerns with the quality of care are associated with their level of grief 6 months after the death of the patient. Implications for Research, Policy, or Practice. This cross-sectional study suggests that efforts to improve hospice quality may lead to diminished grief.
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