Abstract
This study sought to identify the perception of the family caregivers regarding care provided by them and the ESF to the elderly with dementia. This qualitative, analytical and descriptive research was carried out through semi-structured interviews, with five family caregivers users of a primary care facility organized by the ESF, located in the city of Rio de Janeiro. The collected material was submitted to the French School of discourse analysis. Analysis of the symptoms that affect the routine and the feelings of the caregiver generate considerable changes. Family history, family coping with difficult situations, and support for backwardness represented by lack of support from other family members and the State intensify care-related problems. Self-abdication, isolation, and negative subjective interpretations are the producers and aggravators of the psychic distress of family caregivers. Despite its limitations, the ESF receives seniors with dementia and caregivers, but it is not considered a reference of care by family caregivers. Family caregivers affirm that what intensifies the challenges of care is the situation of abandonment experienced by them, impacting as subjective dynamics of oppression and self-abdication, leading to conflicts that reflect in the care situation.
Highlights
Population aging and dementia as a public health priority by the World Health Organization[1] predicts the impact on the dynamics of care and the health system
Dementia significantly affects the family of the elderly, especially the family caregiver, who becomes responsible for every care routine
Sometimes the burden of care for older adults with dementia transcends the bearable limits of caregivers and end up generating conflicts and breakup in the family structure, which in many cases is responsible for the risk of elderly institutionalization
Summary
Population aging and dementia as a public health priority by the World Health Organization[1] predicts the impact on the dynamics of care and the health system. In the discourse of family caregivers, seniors with dementia have aggressive behaviors such as agitation, spitting, cursing, clawing, throwing objects, revealing a level of aggression that can impact the feelings and interpretations produced during the care routine.
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