Abstract
Caregivers of people with Alzheimer’s and related dementias (ADRD) require support. Organizations have pivoted from traditional in-person support groups to virtual care in the face of the COVID-19 pandemic. We describe two model programs and their pragmatic implementation of virtual care platforms for ADRD caregiver support. A mixed methods analysis of quantitative outcomes as well as a thematic analysis from semi-structured interviews of facilitators was performed as part of a pragmatic quality improvement project to enhance delivery of virtual support services for ADRD caregivers. Implementation differed among individual organizations but was well received by facilitators and caregivers. While virtual platforms can present challenges, older adults appreciated the strength of group facilitators and reported enhanced connectedness related to virtual support. Barriers to success include the limitations of virtual programming, including technological issues and distractions from program delivery. Virtual support can extend outreach, addressing access and providing safe care during a pandemic. Implementation differs among organizations; however, some elements of virtual support may be long-lasting.
Highlights
Caregivers of people with Alzheimer’s and related dementias (ADRD) are at a greater risk for anxiety, depression and poorer quality of life
We describe how two organizations collaborating within the Middle Tennessee Geriatric Workforce Enhancement Program [3] implemented differing virtual caregiver support platforms during the COVID-19 pandemic
In Caregivers First, the domains Individuals involved and Process were seen as strengths, while elements of Outer setting, Inner setting and Intervention were potential barriers to implementation
Summary
Caregivers of people with Alzheimer’s and related dementias (ADRD) are at a greater risk for anxiety, depression and poorer quality of life. The COVID-19 pandemic and associated physical distancing measures increased the loneliness and social isolation of both persons living with ADRD and their caregivers due to fewer caregiver opportunities for inperson coping strategies, socialization, support and respite [1,2]. The global pandemic had notable consequences on home and community-based services, including caregiver support services. Caregiver support programs across all sectors pivoted quickly from inperson to virtual care to address prevalent needs and continue engagement [2]. We describe how two organizations (a VA medical center and a statewide non-profit) collaborating within the Middle Tennessee Geriatric Workforce Enhancement Program [3] implemented differing virtual caregiver support platforms during the COVID-19 pandemic.
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