Dementia caregiver burden and its toll on caregiver health

Abstract

AbstractBackgroundIn 2019, more than 16 million U.S. family members and friends provided 18.6 billion hours of unpaid care to people with cognitive impairment. Mexican Americans (MAs) make up two thirds of the Latinx population and research shows that MA caregivers report more caregiver burden compared to non‐Hispanic Whites (NHW). The purpose of this study is to examine the underlying mechanisms influencing caregiver burden on the physical and mental health of caregivers by ethnicity and familism.MethodWe recruited adults 65 and older with cognitive impairment (Montreal Cognitive Assessment score>25), and their caregivers living in Nueces County, Texas. Caregiver burden was measured using the Zarit Burden Interview. Familism was measured using a 18‐item scale. Caregiver’s mental and physical health were derived from the 36‐Item Short Form Survey. Covariates included caregiver’s age, sex, ethnicity, education and care recipient’s cognitive function and physical impairment, including the ability to eat, dress or go to the toilet without assistance. We used weighted path analysis to test effects of ethnicity, familism and caregiver burden on caregiver’s mental and physical health. Covariates with p‐values>0.15 were excluded to attain a parsimonious reduced model.ResultWe included data from 516 caregivers and those they cared for. MA caregivers were younger, female, had less education and scored higher on the familism scale compared to NHW (Table 1). Figure 1 includes results from our reduced weighted path model which presented a good model fit. Increased caregiver burden was associated with worse mental (B = ‐0.53;p<0.001) and physical health (B = ‐0.14;p = 0.003). Familism had indirect positive effects on mental and physical health outcomes mediated by lowering caregiver burden (B = ‐0.15;p = 0.001). Being a MA caregiver was associated with a stronger level of familism (B = 0.49;p<0.001). Findings indicate that MA caregivers have better physical and mental health due to reduced caregiver burden because of stronger family relations.ConclusionResults show that increased caregiver burden is associated with worse caregiver’s mental and physical health. However, among MA, familism can be a protective factor against caregiver burden. Findings can contribute to early identification, intervention and coordination of services to help reduce caregiver burden, particularly in the growing MA informal caregiver population.