Delivering sensitive health care information: Challenging the taboo of women's sexual health after pelvic radiotherapy

Abstract

Objective The aim of this study was to elicit current practice with regard to the content and delivery of patient education for women undergoing pelvic radiotherapy. Methods A 38-item questionnaire was sent to all radiotherapy departments ( n = 65) and a convenience sample of specialist gynaecological oncology nurses ( n = 166), with response rates of 62% ( n = 40) and 42% ( n = 52), respectively. Data analysis of 32 different patient education leaflets from individual cancer units, cancer networks and vaginal dilator manufacturers was conducted. Content was evaluated on the inclusion and accuracy of the key knowledge women should receive before completing pelvic radiotherapy. Results Patient education focused on the technical aspects of vaginal dilation with minimal content on psychosocial 6% ( n = 2) or sexual health components 44% ( n = 14). It was evident from the information leaflets reviewed and questionnaire responses that there was duplication of verbal and written information provision in the clinical setting as opposed to using different information strategies to provide more comprehensive coverage of knowledge gaps in post-treatment sexual rehabilitation. Conclusion Results suggest the provision of vaginal dilation advice and sexual health information may benefit from being placed in the wider context of assessing treatment impact on women's health. Practice implications It is important to analyse the management of sensitive content, within both written information materials and verbal consultations, to determine the most effective information provision strategies that support sexual health interventions in cancer practice.