Abstract
The European Cystic Fibrosis Society (ECFS) Neonatal Screening Working Group (NSWG) aims to monitor the performance of newborn bloodspot screening (NBS) for cystic fibrosis (CF) and compare protocols to optimize effectiveness, whilst reducing negative impact in agreement with published international guidelines. 1 The NSWG has supported numerous European countries and regions to establish NBS for CF. Collecting data on the performance of programmes across Europe has been a key element in evaluating and improving quality.
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