Abstract

Treatment teams providing affirmative medical transgender care to young people frequently face moral challenges arising from the care they provide. An adolescent’s capacity to consent, for example, could raise several issues and challenges. To deal with these challenges more effectively, several Dutch treatment teams started using a relatively well-established form of clinical ethics support (CES) called Moral Case Deliberation (MCD). MCD is a facilitator-led, collective moral inquiry based on a real case. This study’s purpose is to describe the teams’ perceived value and effectiveness of MCD. We conducted a mixed methods evaluation study using MCD session reports, individual interviews, focus groups, and MCD evaluation questionnaires. Our results show that Dutch transgender care providers rated MCD as highly valuable in situations where participants were confronted with moral challenges. The health care providers reported that MCD increased mutual understanding and open communication among team members and strengthened their ability to make decisions and take action when managing ethically difficult circumstances. However, the health care providers also expressed criticisms of MCD: some felt that the amount of time spent discussing individual cases was excessive, that MCD should lead to more practical and concrete results, and that MCD needed better integration and follow-up in the regular work process. We recommend future research on three matters: studying how MCD contributes to the quality of care, involvement of transgender people themselves in MCD, and integration of CES into daily work processes.

Highlights

  • Transgender care is being offered to an increasing number of children and adolescents (Aitken et al, 2015; Chen, Fuqua, & Eugster, 2016; de Vries & Cohen-Kettenis, 2012; Wood et al, 2013)

  • The incongruence they experience between assigned sex and identified gender is called gender dysphoria (GD) and may be diagnosed according to the DSM-5 when accompanied by distress (American Psychiatric Association, 2013)

  • Despite the small number of interviewees, we believe that due to our careful selection of participants our study results reflect the views of a representative group. In this mixed method study, Dutch transgender care providers evaluated the use of Moral Case Deliberation (MCD) as a form of ethics support

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Summary

Introduction

Transgender care is being offered to an increasing number of children and adolescents (Aitken et al, 2015; Chen, Fuqua, & Eugster, 2016; de Vries & Cohen-Kettenis, 2012; Wood et al, 2013). The incongruence they experience between assigned sex and identified gender is called gender dysphoria (GD) and may be diagnosed according to the DSM-5 when accompanied by distress (American Psychiatric Association, 2013). The term “adolescent” refers to children and adolescents in whom puberty has started.

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