Abstract
There are strict regulations and restrictions in the European legislation about personal data and medical information, collected from the patients. Some of the legal requirements have recently been implemented and still confuse medical and research circles and insufficient information of doctors about what is allowed and what is not. On the other hand, physicians and researches need to use data for the development of the medical science, in interaction with other physicians and medical institutions, for statistics, prevention, and public health, for clinical trials, est. The aim of the current survey is to highlight some areas of the Data Protection Legislation that are particularly relevant to the area of health research.
Highlights
Community institutions and bodies collect and use health data
The GDPR requires the implementation of effective controls across the six privacy principles of [1]:
The healthcare research sector is significantly impacted by the Data Protection Legislation because of the large volume of sensitive personal data of patients and health related data
Summary
Community institutions and bodies collect and use health data. Most of the rules defining the conditions and hypothesis in which health data are collected and used by Community institutions and bodies are provided by the Data Protection Legislation.The General Data Protection Regulation (EU) 2016/679 (GDPR)[1] and the Data Protection Act of each EU-member, including health research regulations are known collectively as the Data Protection Legislation. Community institutions and bodies collect and use health data. Most of the rules defining the conditions and hypothesis in which health data are collected and used by Community institutions and bodies are provided by the Data Protection Legislation. The General Data Protection Regulation (EU) 2016/679 (GDPR)[1] and the Data Protection Act of each EU-member, including health research regulations are known collectively as the Data Protection Legislation. To restrict processing of their personal data; to obtain their personal data and reuse it for their own purposes (‘data portability’); to object to the processing of their personal data; not to be subject to automated decision making and profiling. The healthcare sector is significantly impacted by the Data Protection Legislation because of the volume of sensitive personal data which is used for the purposes of patient care, related institutional management and scientific research
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