Abstract
AimNo suitable Danish questionnaire exists to evaluate patient satisfaction with various patient reported outcome measures. Thus, the aim of this research project was to conduct a study on the translation and cultural adaption of an American patient reported experience measures questionnaire, “Patient Feedback Form”, among Danish patients, and to examine selected psychometric properties within reliability.Material and methodsIn the first phase of the study, the Patient Feedback Form was forward and backward translated following the methodology of existing guidelines. Subsequently, cognitive interviewing was performed with seven cancer patients and seven healthy persons (19–86 years old/6 men and 8 women) to ensure that questions were easy to understand and made sense to Danish interviewees.In the second phase, phone interviews were carried out with 95 prostate cancer patients after they had responded to the same Patient Feedback Form. Missing data was imputed using the Expectation-Maximization technique. To examine the structure of the questionnaire, an exploratory factor analysis was conducted. Cronbach’s alpha was calculated to investigate internal consistency.ResultsThere were only minor disagreements in the translation process, and the reconciliation went smoothly (phase 1). With regard to one item, however, it was difficult to reach a consensus. Through the qualitative validation process, the right solution was found. The results from the psychometric testing (phase 2) showed that four factors had an Eigen value > 1, but only one factor was extracted as the Scree plot had a clear “elbow”, showing a one factor structure that explained 46.1% of the variance. The internal consistency was high as Cronbach’s alpha was 0.89.ConclusionThe translated, culturally adapted, and validated version of the Patient Feedback Form seems to be suitable for measuring satisfaction with patient reported outcome measures in a Danish setting. While the results should be treated with caution due to the small sample size, psychometric testing indicates that the questionnaire is a valid instrument. However, additional psychometric testing such as hypotheses testing, responsiveness, and test-retest on a larger and more diverse sample size is required to further verify the validity of the instrument.
Highlights
Several questionnaires to measure patient reported outcome measures (PROMs) exist and have become an increasingly popular source for collecting information on patient conditions, e.g. physical symptoms, toxicities, or psychosocial problems [1]
The translated, culturally adapted, and validated version of the Patient Feedback Form seems to be suitable for measuring satisfaction with patient reported outcome measures in a Danish setting
While the results should be treated with caution due to the small sample size, psychometric testing indicates that the questionnaire is a valid instrument
Summary
Several questionnaires to measure patient reported outcome measures (PROMs) exist and have become an increasingly popular source for collecting information on patient conditions, e.g. physical symptoms, toxicities, or psychosocial problems [1]. The data collected in research settings has generally not been available to clinicians [5]. PROMs have moved into the world of routine care – probably eased by electronic data collection – where they are integrated into the patient trajectory with the purpose of influencing treatment and care. It is important to explore if the patients found the questionnaire easy to complete, if it improved patientclinician communication and/or enhanced quality of care. These are relevant issues to examine at a time when focus on patient reported experiences and attention to patient involvement and satisfaction have increased and are mandatory in many health care settings. Using a Patient Reported Experience Measures questionnaire (PREMquestionnaire) to evaluate if a given PROM is worthwhile [5], and/or to identify which PROM(s) to use [4, 10], may be one method to select feasible and patient-acceptable PROMs
Sign-in/Register to view highlights & summary Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
