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Abstract
The aim of this study was to enhance a deeper understanding of daily life as experienced by young adults with Type 1 Diabetes and their close relatives. Young adulthood is commonly considered as an amendment to adult roles. Increased responsibility, such as a long-term illness in young adulthood, might lead to increased stress and anxiety. Type 1 Diabetes involves large obligations related to self-care, and close relatives might play an important role in managing daily life. A hermeneutic study involving interviews with a narrative approach with couples. The hermeneutic analysis revealed that T1D is always unconditionally present in daily life for young adults and their close relatives. Close relatives are important supporters, they have an understanding based on sharing daily life with the young adults with T1D. Young adults and their close relatives highlighted the experiences of being questioned, which in turn threatens the young adults’ integrity.
Highlights
Living with a long-term illness such as Type 1 Diabetes (T1D) means a variety of changes and consequences in one’s everyday life [1, 2]
An always present actuator Couples described that daily life gave the impression of an always present actuator, i.e. the T1D always unconditionally were present and they all found different ways of handling ups and downs
The participants with T1D described that it was a little embarrassing to tell about low blood glucose, instead they could feel bad without saying something to for example, their co-workers
Summary
Living with a long-term illness such as Type 1 Diabetes (T1D) means a variety of changes and consequences in one’s everyday life [1, 2]. Type 1 Diabetes is a common illness, as about 387 million people live with the condition worldwide [3, 4] In Sweden, almost 40,000 adults with diabetes were registered in 2016, approximately 10,000 of whom were young adults [5]. Young adulthood in combination with T1D involves numerous challenges and concerns, beyond those experienced by most individuals in this age group [9, 10]. This period of life is commonly considered as a stepwise separation from parents and an amendment to adult roles [11, 12]. Abdoli et al (2017) stated that young adults with T1D exhibited daily struggles living with their illness, attempting to grow and move into adult roles while taking complete responsibility of their diabetes management [15]
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