Abstract
Cystic fibrosis (CF) is the most common lethal genetic disease in the white population, with a prevalence of one in 2500. Approximately 130 patients are given a diagnosis of CF in Canada each year; the majority of cases are diagnosed during the childhood years. There are just over 3000 patients (adults and children) registered with the Canadian Cystic Fibrosis Foundation Patient Data Registry, and the majority are followed regularly in one of 37 CF clinics. Patients are often referred to a CF clinic when the diagnosis is suspected, both to confirm the diagnosis, and to initiate the required treatments and education to manage this life-long disease.
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