Abstract
BackgroundAcceptance of disability (AOD) is a process that a patient must undergo to cope with altered abilities, but its effect in Parkinson's disease (PD) remains unclear. The present study aimed to determine the level of AOD, examine the influence of sociodemographic variables and disease characteristics on the AOD level, and evaluate the relation between AOD level and quality of life in a cohort of PD patients from Southwest of China.MethodsA total of 336 PD patients were consecutively recruited from November 2018 to October 2020. At enrollment, demographic and clinical data were obtained using a questionnaire, and the Acceptance of Disability Scale-Revised (AODS-R) scale was used to measure the AOD level.ResultsThe mean total score of AOD is 87.28, indicating a moderate level of disability acceptance in PD patients. Statistical analysis showed that understanding of PD, family support, and UPDRS-II score were major factors affecting AOD level, and patients with low AOD levels were more likely to have poorer quality of life.ConclusionAOD is a serious problem in PD patients in Southwest China, especially among individuals with insufficient family support and a lack of recognition of the disease. AOD was also associated with motor function and daily living ability, thus suggesting that evaluation of the AOD and promotion of the awareness may be helpful to improve the quality of life in patients with PD.
Highlights
Acceptance of disability (AOD) is a process that a patient must undergo to cope with altered abilities, but its effect in Parkinson’s disease (PD) remains unclear
We found that non-motor disturbances contributed to the reduced quality of life (QoL) of PD patients with long disease duration [5]
The scale has been translated into Chinese and was tested in Singapore and China, and the results showed that the Chinese version of PD Questionnaire 8 (PDQ-8) was verified with good reliability and validity, and the items had high correlation coefficients comparable to those of the English scale [26]
Summary
Acceptance of disability (AOD) is a process that a patient must undergo to cope with altered abilities, but its effect in Parkinson’s disease (PD) remains unclear. It is estimated that approximately 8.7 million individuals will be living with a PD diagnosis worldwide, and the number of PD patients in China will rise to 4.94 million in 2030, accounting for 57% of the total number [2]. PD patients typically experience cardinal motor symptoms and numerous non-motor symptoms over a prolonged period. Neuropsychiatric disorders, such as anxiety and depression, were common in patients with PD, and considered clinically significant in 13–89% of the patient population [3]. The disability increases with disease progression, PD patients would become dependent on care from others This condition leads to a great negative impact on patients’ and caregivers’ lives [7], suggesting that the improvement of psychological adjustment would improve the QoL of PD patients
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