Abstract
This study aims to contribute to a better understanding of the main family caregivers of highly dependent elderly. Performed in a geriatric outpatient unit, the study used a content analysis methodology, and data were collected with interviews and 14 group sessions with 24 subjects. The following categories emerged: denial versus acceptance of the disease before and after diagnosis; how and why the main caregiver assumes this role; caregiver's characteristics; caregiver's experiences; meanings ascribed to care-giving; history of the caregiver's relationship to the elder before the disease; caregiver/elder relationship since onset of the disease; changes in the caregiver's life; changes in the family; and causes for the appearance of the disease. In conclusion, there are three dimensions in the target issue: (1) implications of the legacies, multi-generational transmission, repetition of the patterns, and myths and beliefs in each family system; (2) seniors as active participants in the care-giving decision; and (3) the support group as a key resource for the family.
Highlights
Com o aumento da expectativa de vida, aumenta também a possibilidade de o idoso ser acometido por doenças de ordens diversas
This study aims to contribute to a better understanding of the main family caregivers of highly dependent elderly
Performed in a geriatric outpatient unit, the study used a content analysis methodology, and data were collected with interviews and 14 group sessions with 24 subjects
Summary
Utilizando o método de análise de conteúdo 3, fizemos uma primeira leitura completa do material transcrito. Registrando a freqüência de surgimento das unidades de registro. A dinâmica própria do grupo de suporte ofereceu dados que permitiram verificar a relevância dos temas expressos nas entrevistas. Pelos dados colhidos das entrevistas e nos grupos, verificamos em que contextos surgiam os temas, emergindo deles as seguintes categorias que serão discutidas a seguir: negação versus aceitação da doença antes e depois do diagnóstico; como e por que surge o cuidador principal; características do cuidador; vivências do cuidador; significados do ato de cuidar; história do relacionamento do cuidador com o idoso antes da doença; relacionamento cuidador/idoso após a doença; mudanças na vida do cuidador principal; mudanças na família; causas para o surgimento da doença
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