Abstract
ABSTRACTObjective To translate and make cross-cultural adaptation of NECPAL CCOMS-ICO© tool to Portuguese, and to analyze its semantic validity.Methods A methodological research about NECPAL CCOMS-ICO© tool cross-cultural adaptation, translated from Spanish into Portuguese and measurement of semantic validity. The cross-cultural adaptation process was conducted according to Beaton recommendations, including translation, translation synthesis, back-translation, and analysis of semantic, idiomatic, conceptual, and cultural equivalence of translated and back-translated tool versions, resulting in a pre-final version, which was submitted to a pre-test (n=35). Contend Validity Index was calculated to analyze semantic validity.Results Cross-cultural adaptation process allowed us to prepare the final version of this tool, which was named NECPAL-BR. Collected data from pre-testing step enabled the analysis of semantic validity. The Content Validity Index observed at this step was 0.94.Conclusion The semantic validity of the tool in its Portuguese version was confirmed; therefore, it may assist in screening chronic progressive disease patients, aiming to provide early palliative care. It may also be used to develop clinical and team performance indicators, and be employed as a care management tool designed to optimize resources.
Highlights
Patient care in chronicity has been made evident in face of the demand for special care, which is modified throughout the health-disease process, initiating with measures of promotion and extending to palliative care.[1]. This modality of assistance is defined by the World Health Organization (WHO) as care delivered by a multiprofessional team, aiming to improve quality of life of patients and their families, facing a life-threatening disease, through prevention and relief of suffering, by means of early identification, impeccable assessment and treatment of pain and other physical, social, psychologic and spiritual symptoms.[1]
Among the measures for stratifying the demand for patient care during progression of chronic disease, this study focused on the identification of those who need to be included in the context of palliative care, in order to characterize both the signs of progressive worsening and the need to implement differentiated actions as early as possible – and in the advance phase of the disease
The Institut Catala d’Oncologia (ICO), in Spain, has used the NECPAL CCOMS-ICO© instrument to identify patients requiring palliative care. This institute is one of the WHO collaborating centers assigned to develop a system of care to patients in palliative care. Such an instrument is a part of the Proyecto NECPAL CCOMS-ICO© Identificación y Atención Integral-Integrada de Personas com Enfermedades Crónicas Avanzadas em Servicios de Salud y Sociales, a project that has the essential purpose of improving palliative attention given to patients with early identification, expanding their activities to carriers of non-oncologic diseases and at any level of healthcare.[4,5]
Summary
Patient care in chronicity has been made evident in face of the demand for special care, which is modified throughout the health-disease process, initiating with measures of promotion and extending to palliative care.[1]. Especially when nononcologic, are subject to care models strongly oriented towards acute conditions and events Considering this bias, healthcare organizations have sought to develop policies of care based on a stratification of risks and needs, directing healthcare teams towards the appropriate use of technologies and medications, and supporting the change in paradigm.[2]. This institute is one of the WHO collaborating centers assigned to develop a system of care to patients in palliative care Such an instrument is a part of the Proyecto NECPAL CCOMS-ICO© Identificación y Atención Integral-Integrada de Personas com Enfermedades Crónicas Avanzadas em Servicios de Salud y Sociales, a project that has the essential purpose of improving palliative attention given to patients with early identification, expanding their activities to carriers of non-oncologic diseases and at any level of healthcare.[4,5]
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