Abstract
Culturally adapted measures to assess the performance of activities of daily living (ADL) in individuals with Parkinson's disease (PD) are limited in Brazil. To adapt the ADL Questionnaire to the Brazilian culture and to analyze its reproducibility in individuals with PD. The ADL Questionnaire was translated and cross-culturally adapted to Brazilian Portuguese language. Reproducibility was analyzed using test-retest reliability and agreement values. The test-retest reliability of the individual items and total scores were calculated. The limits of agreement were verified using the Bland-Altman plot. The standard error of measurement (SEM) and the minimum detectable change (MDC) were calculated. Patients who were classified on a score of 1-4 on the modified Hoehn and Yahr scale were eligible. No divergence was identified between the original and the adapted version, which demonstrated adequate semantic and conceptual equivalence. The Bland-Altman plot showed no systematic changes in the mean test-retest scores. The intraclass correlation coefficient (ICC) was 0.98 (95% confidence interval [95%CI] 0.93-0.99), and all individual items showed good levels of reliability (>0.60). The SEM (SEM%) and MDC (MDC%) values were 3.0 (6.75%) and 8.2 (18.7%), respectively. These values are within the recommended values. The ADL-Brazil Questionnaire is a reliable instrument to be used for clinical and research purposes to assess self-perceptions of ADL performance in individuals with PD.
Highlights
Parkinson’s disease (PD) is a progressive neurological disorder characterized clinically by resting tremor, bradykinesia, rigidity, and postural instability[1]
The activities of daily living (ADL)-Brazil Questionnaire had adequate test-retest reliability and agreement values within acceptable limits. These results indicate the potential for its application in clinical practice and research to evaluate ADL in individuals’ perception of their performance
Part II are extensively applied for the evaluation of disabilities, but these scales mix items directly related to daily activities with patient perceptions of primary disease manifestations, such as speech, salivation, swallowing, tremor, and freezing[25,33]
Summary
Parkinson’s disease (PD) is a progressive neurological disorder characterized clinically by resting tremor, bradykinesia, rigidity, and postural instability[1] These cardinal signs cause limitations in activities, such as walking[2] and manual dexterity[3], and affects the ability to perform activities of daily living (ADL). The ADL assessment is relevant to the rehabilitation process and should be based on valid and reliable measures Generic measures, such as the Barthel Index[8], Lawton and Brody scale[8], and the Functional Independence Measure[8], have been used to assess individuals with PD. Adapted measures to assess the performance of activities of daily living (ADL) in individuals with Parkinson’s disease (PD) are limited in Brazil.
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