Abstract
This manual describes the development of the Cerebral Palsy Quality of Life Questionnaire for Adolescents (CP QOL-Teen), a condition-specific quality of life (QOL) questionnaire for adolescents with cerebral palsy aged 13 to 18 years. CP QOL-Teen extends on the Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL-Child), developed for children with cerebral palsy aged 4-12 years. The CP QOL-Teen was developed by a multidisciplinary team of clinical and adolescent health researchers, in collaboration with parents, and adolescents with cerebral palsy.Following the development of the Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL-Child) we received many requests for an instrument that captures the quality of life of adolescents with cerebral palsy. The CP QOL-Adolescent is a measure of quality of life for adolescents with cerebral palsy that can be used by researchers, clinicians, health professionals and educators to measure and assess changes in adolescent’s quality of life. This manual provides only basic information about administering and scoring the CP QOL-Teen. Readers interested in background literature, development of the CP QOL-Teen and psychometric properties should refer to academic publications.
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