Correlation between resilience and family management mode in nephrotic syndrome children

Abstract

Objective To understand the family management and resilience in nephrotic syndrome children to explore the influence of family management on resilience so as to provide a reference for family management and environmental support for chronic disease children. Methods From April 2017 to April 2018, we selected 130 nephrotic syndrome children and main caregivers at a Class Ⅲ Grade A comprehensive children's hospital as subjects by convenience sampling. The investigation was carried out with the general information questionnaire, Chronic Illness Children's Resilience Scale (CICRS) and Family Management measure (FaMM) . A total of 130 questionnaires were sent out and 127 valid questionnaires were collected with 97.69% for the valid recovery rate. Results Among those 127 nephrotic syndrome children, the total score of resilience was (99.84±12.53) . There were 15 (11.81%) children with the high level of resilience, 102 (80.31%) children with medium level and 10 (7.87%) children with the low level. Results showed that the score of child daily life had a positive correlation with the total score of children's resilience (P<0.05) ; scores of family members' fears of disease and difficulty of disease management had negative correlations with the score of children's coping style (P<0.05) ; score of family members' management ability had a positive correlation with the score of children's coping style (P<0.05) ; score of disease burn out was negatively correlated with the score of interpersonal relation (P<0.05) ; score of supporting each other of parents were positively correlated with the scores of children's individual characteristics and children's perceived family influence (P<0.05) . Conclusions Resilience and family management of nephrotic syndrome children need to be improved. Nurses should pay attention to the influence of family support and environmental support on psychological factors in children, and guide children to improve their coping capacity and family members to positively perceive children's school function, interpersonal relation and family environment to improve children's psychological health. Key words: Nephrotic syndrome; Resilience, psychological; Family management; Correlation