Abstract
Background: Mental health services are required to take account of the needs of carers, yet little isknown about how services affect carers. Aims: This paper explores the relationship between the user’s mental health problems, the servicesreceived and the impact of caring on carers. Methods: Sixty-four carers were interviewed, measuring their experiences of care-giving, carer stressand the service user’s level of impairment. A robust, composite measure of user severity was derived. Results: Carers were sometimes better judges than care co-ordinators of user impairment. Theirexperience reflected the independently rated severity of service users’ problems. When carers wereaware of care plans, they felt less negative about caring. Even in above-average mental health services,carers lacked information about: care plans, medication and complaints procedures. Conclusions: This evidence can be used in allocating resources such respite care, family therapy andCBT to carers. These findings have implications for how mental health services might improve theirprovision for carers, for instance, involvement in care planning may help carers to cope.
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