Coping Strategies and Psychological Distress Among Mothers of Patients With Nonsyndromic Cleft Lip and Palate and the Family Impact of This Disorder

Abstract

The current study aimed to investigate the coping strategies and level of psychological distress in mothers of patients with cleft lip and palate (CLP) and the family impact of this disorder. Participants were mothers of 55 children or adolescents with nonsyndromic CLP recruited from families attending a CLP clinic and 2 university hospitals in Mashhad, northeast of Iran. Family impact, psychological distress, and coping strategies were assessed using validated psychological questionnaires including Family Impact Scale, General Health Questionnaire, and Coping Response Inventory. Findings revealed that mothers relied more on the use of approach-oriented rather than avoidance-oriented coping strategies. According to General Health Questionnaire scores, 38.2% of mothers showed some evidence of psychological distress, and 23.6% were suspected of having severe psychological problems. Regarding the family impact of CLP, mothers reported the greatest impact to be on the family's financial status and parental emotions. Those mothers who used avoidant coping strategies reported a greater family impact of CLP (P = 0.002). Emotional discharge and acceptance coping were significant predictors of family impact (P = 0.037 and P = 0.035, respectively). Mothers of 13- to 18-year-old patients with CLP reported greater use of problem-solving coping strategy when compared with mothers of younger patients (P = 0.006). Child's age and coping strategies were not significant predictors of the level of mother's psychological distress. Increased knowledge about how parents cope with their child's craniofacial condition may help caregivers develop a more family-oriented care approach, which is sensitive to the psychosocial needs of parents, children, and their families.