Abstract
Purpose: Improvements in cancer outcomes for adolescents and young adults with cancer lag behind those of other age groups, and few psychosocial interventions have been developed specifically for this population. This study sought to explore both adolescent cancer patients' interest in engaging in a participatory study and their perceived coping needs. Methods: Applying a grounded theory and participatory action approach, cancer patients aged 13–19 years who were at least 3 months post-diagnosis at a tertiary pediatric oncology service were invited for group discussions and activities involving a t-shirt design and blog. Inductive coding and thematic analysis were applied to session transcripts. Results: Four themes were elicited regarding coping with cancer as an adolescent: adjustments related to physical and social participation, social perceptions, physical effects, and health-related communication needs. Peer-to-peer messages aligned with shared coping strategies, particularly featuring elements of humor and resilience while connecting to culture and redefining one's individual and group identity. Conclusion: Participatory methods can be effective in eliciting perceptions and needs in adolescents with cancer, and warrant further attention in research efforts to define and assess interventions and patient-reported outcomes for adolescents with chronic disease.
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