Continuity of care for adults living in the community who have been diagnosed with congenital heart disease

Abstract

There is a need for continuity of care for adults diagnosed with congenital heart disease (CHD) who have transitioned out of paediatric services and live in the community. The aim of this scoping review was to determine the types of psychosocial resources available to them. It examined English-language materials published or accessible between 1997 and 2018 that addressed CHD interventions. The findings suggest no psychosocial-based interventions for the adult CHD population have been evaluated. However, preliminary evidence begins to describe the needs and challenges of people with CHD in the community and primary care; it also identifies possible interventions that may require further exploration.