Contextualising an online mindfulness-based intervention for young people with cancer: A qualitative study

Abstract

BackgroundDespite improved prognosis, living with cancer can still negatively impact young people’s psychosocial wellbeing. Mindfulness-based interventions (MBI) have been shown to help manage cancer-related stress but tailored interventions for young people are warranted. In addition, attendance at intensive face-to-face mindfulness-based interventions is often a barrier to access and adherence. AimThis study aims to contextualise an online MBI, for young people with cancer (YPWC). MethodsThis study modified an online MBI using a qualitative research approach through several phases, including a discussion with experts, a workshop with YPWC (n=6), followed by focus groups with health professionals (n=5) and YPWC (n=7). FindingsThe qualitative thematic analysis of data from the workshop discussion and focus groups identified two key themes, which were 1) developing mindfulness skill and adopting into daily living and appropriateness; and 2) accessibility of design and delivery of an MBI eBook. The participants in the workshop and focus group provided various recommendations and as a result of this data, the modules were modified and further tailored both at the design level and the module contents. DiscussionThis study contextualised a self-directed, online MBI through the participation from YPWC and health care providers. This participatory approach enabled the development of a young people friendly intervention which incorporated cancer focused case studies with mindful reflections, all of which were well received by YPWC. ConclusionThe involvement of end users in the development phase significantly improved the acceptability of this intervention design. The tailored MBI potentially aids the psychosocial well-being of young people with cancer.