Abstract

Background: This study aimed to present the development process and characteristics of the Korean Registry of Acute Myocardial Infarction for Regional Cardiocerebrovascular Centers (KRAMI-RCC). Methods: We developed KRAMI-RCC, a web-based registry for patients with AMI. Patients from 14 RCCs were registered for more than three years from July 2016. It includes an automatic error-checking system, and user training and on-site monitoring are performed to manage data quality. Results: A total of 11,700 AMI patients were registered in KRAMI-RCC over three years (73.9% men). The proportions of patients with ST-elevation and non-ST-elevation myocardial infarction at discharge were 43.4% and 56.6%, respectively. Of the total three-year patients, 5.6% died in the hospital, and 4.4% died 12 months after discharge. The case fatality within 12 months was 9.7%. Pre-hospital care data showed delayed arrival time after onset of symptoms (median 153 min) and low transportation rate by public ambulance (25.2%). Post-hospital care data showed lower participation rate in the second rehabilitation program (16.8%). Conclusions: The recently developed KRAMI-RCC registry has been more focused on pre-hospital and post-hospital data, which will be helpful in understanding the current state of AMI disease management and in making policy decisions to reduce case fatality in Korea.

Highlights

  • Cardiovascular disease (CVD) is the primary cause of death worldwide, accounting for 31.8% of all deaths [1]

  • In 2018, the Ulsan University Hospital was newly established as an RCC and was included in the KRAMI-RCC

  • Pre-hospital, in-hospital, and post-hospital data and outcome data of approximately 11,700 patients registered in the KRAMI-RCC over the past

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Summary

Introduction

Cardiovascular disease (CVD) is the primary cause of death worldwide, accounting for 31.8% of all deaths [1]. It is a major cause of loss in quality of life, corresponding to 330 million years of life lost and 35.6 million years lived with disability [2]. Ischemic heart disease, represented by acute myocardial infarction (AMI), has the highest mortality rate and causes the poorest quality of life [3]. The representative AMI registry is the WHO MONItoring of Trend and Determinants in Cardiovascular Disease registry, which started in 1979, enrolling investigators from 26 countries [4].

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