Abstract
Background: This study aimed to present the development process and characteristics of the Korean Registry of Acute Myocardial Infarction for Regional Cardiocerebrovascular Centers (KRAMI-RCC). Methods: We developed KRAMI-RCC, a web-based registry for patients with AMI. Patients from 14 RCCs were registered for more than three years from July 2016. It includes an automatic error-checking system, and user training and on-site monitoring are performed to manage data quality. Results: A total of 11,700 AMI patients were registered in KRAMI-RCC over three years (73.9% men). The proportions of patients with ST-elevation and non-ST-elevation myocardial infarction at discharge were 43.4% and 56.6%, respectively. Of the total three-year patients, 5.6% died in the hospital, and 4.4% died 12 months after discharge. The case fatality within 12 months was 9.7%. Pre-hospital care data showed delayed arrival time after onset of symptoms (median 153 min) and low transportation rate by public ambulance (25.2%). Post-hospital care data showed lower participation rate in the second rehabilitation program (16.8%). Conclusions: The recently developed KRAMI-RCC registry has been more focused on pre-hospital and post-hospital data, which will be helpful in understanding the current state of AMI disease management and in making policy decisions to reduce case fatality in Korea.
Highlights
Cardiovascular disease (CVD) is the primary cause of death worldwide, accounting for 31.8% of all deaths [1]
In 2018, the Ulsan University Hospital was newly established as an RCC and was included in the KRAMI-RCC
Pre-hospital, in-hospital, and post-hospital data and outcome data of approximately 11,700 patients registered in the KRAMI-RCC over the past
Summary
Cardiovascular disease (CVD) is the primary cause of death worldwide, accounting for 31.8% of all deaths [1]. It is a major cause of loss in quality of life, corresponding to 330 million years of life lost and 35.6 million years lived with disability [2]. Ischemic heart disease, represented by acute myocardial infarction (AMI), has the highest mortality rate and causes the poorest quality of life [3]. The representative AMI registry is the WHO MONItoring of Trend and Determinants in Cardiovascular Disease registry, which started in 1979, enrolling investigators from 26 countries [4].
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