Abstract
OBJECTIVE: relationships between subjective satisfaction, distress and quality of life for severely mental ill patients with different functional levels and gender was investigated in a multi-center cohort, using a balanced mix of subjective and clinician rat- ings in an outcome-informed model for a clinical management based on shared decision making, The Quality Star. METHODS: Naturalistic data for 2552 persons, mainly with schizophrenia diagnoses, in long- term treatment and rehabilitation, were analyzed in a cross-sectional study. RESULTS: With increasing Social Function, rated with the split-GAF Disability/ Functioning scale, the better were patients' Satis- faction, subjective Quality of life and Perceived Glo- bal Distress. Women were more satisfied with the care but also more distressed. CONCLUSION: Main findings were in line with other studies. However, the gender differences are in line with some, but not with other, studies. This poses questions how patient fac- tors, instrument constructs, and treatment, especially shared decision making, influence subjective reports.
Highlights
IntroductionSuring social functioning and patient subjective aspects has become increasingly important, as emphasized in a recent review of instruments for social functioning in serious mental illnesses with the title “Functioning is the cornerstone of life” [1]
In addition to the continuous refinement of instruments for diagnosis and measurement of change in terms of psychopathology, development of instruments for mea-suring social functioning and patient subjective aspects has become increasingly important, as emphasized in a recent review of instruments for social functioning in serious mental illnesses with the title “Functioning is the cornerstone of life” [1]
The relationships between subjective satisfaction, distress and quality of life for severely mental ill patients with different functional levels and gender was investigated in a multi-center cohort, using a balanced mix of subjective and clinician ratings in an outcome-informed model for a clinical management based on shared decision making, “The Quality Star”
Summary
Suring social functioning and patient subjective aspects has become increasingly important, as emphasized in a recent review of instruments for social functioning in serious mental illnesses with the title “Functioning is the cornerstone of life” [1]. Regarding schizophrenia it was noted in another review that social function is re-emerging as an important outcome measure, though psychometrics and direct comparisons between differing social function instruments, and their relation to quality of life is unclear [2]. A topic with relation to patient satisfaction is the importance of open and respectful dialogue with patients, keeping in focus the purely patient subjective perception of distress and quality of life as a sound basis for achieving treatment alliance, shared decision making and user empowerment [10,11,12].
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