Abstract

BackgroundHow to best support pregnant women in making truly autonomous decisions which accord with current consent law is poorly understood and problematic for them and their healthcare professionals. This observational study examined a range of ante-natal consultations where consent for an intervention took place to determine key themes during the encounter.MethodsQualitative research in a large urban teaching hospital in London. Sixteen consultations between pregnant women and their healthcare professionals (nine obstetricians and three midwives) where ante-natal interventions were discussed and consent was documented were directly observed. Data were collectively analysed to identify key themes characterising the consent process.ResultsFour themes were identified: 1) Clinical framing - by framing the consultation in terms of the clinical decision to be made HCPs miss the opportunity to assess what really matters to a pregnant woman. For many women the opportunity to feel that their previous experiences had been ‘heard’ was an important but sometimes neglected prelude to the ensuing consultation; 2) Clinical risk dominated narrative - all consultations were dominated by information related to risk; discussion of reasonable alternatives was not always observed and women’s understanding of information was seldom verified making compliance with current law questionable; 3) Parallel narrative - woman-centred experience – for pregnant women social factors such as the place of birth and partner influences were as or more important than considerations of clinical risk yet were often missed by HCPs; 4) Cross cutting narrative - genuine dialogue - we observed variably effective interaction between the clinical (2) and patient (3) narratives influenced by trust and empathy and explicit empowering language by HCPs.ConclusionWe found that ante-natal consultations that include consent for interventions are dominated by clinical framing and risk, and explore the woman-centred narrative less well. Current UK law requires consent consultations to include explicit effort to gauge a woman’s preferences and values, yet consultations seem to fail to achieve such understanding. At the very least, consultations may be improved by the addition of opening questions along the lines of ‘what matters to you most?’

Highlights

  • How to best support pregnant women in making truly autonomous decisions which accord with current consent law is poorly understood and problematic for them and their healthcare professionals

  • Nadine Montgomery’s claim for loss, injury and damages sustained by her baby son who developed cerebral palsy were based on the ground that no ordinarily competent obstetrician acting with reasonable skill and care would have: allowed a diabetic woman of short stature with macrosomic foetus in “early trial of labour” whose foetal heartbeat was grossly abnormal to continue in labour and attempt a vaginal delivery; or fail to consider offering delivery by caesarean section

  • We report in accordance with international accepted guidelines (COREQ) [ 12] and in a manner that calls upon readers to actively engage in assessing its value beyond its contextual confines

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Summary

Introduction

How to best support pregnant women in making truly autonomous decisions which accord with current consent law is poorly understood and problematic for them and their healthcare professionals. This observational study examined a range of ante-natal consultations where consent for an intervention took place to determine key themes during the encounter. By requiring a HCP to advise patients about alternatives and risks which may be material to their particular individual circumstances it endorsed a patient’s central role in decision-making This fully dialogical, tailored approach to information giving in which both parties participated in discussion is inherently challenging in practice not least because what makes a risk or intervention acceptable to one patient may render it unconscionable to another and the broader factors which affect patient’s decision-making are highly individual

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