Abstract
Background: Despite tremendous growth and change in the speciality of multiple sclerosis (MS) nursing in the last decade, there is a dearth of research aimed at defining the role of the MS nurse. This article explores phase 2 of a two-part study to define the MS nurse role in Australasia. Methods: Qualitative inquiry and a form of focused ethnography, called life history, were used to explore the experiences of 25 MS nurses. Semi-structured, one-on-one interviews were analysed using thematic analysis to explore the role and develop a role definition. Findings: The findings reveal five key themes and 21 subthemes to tell the story of a conductor of care. The key themes of holistic healers, sources of support, disease and symptom educators and managers, medication managers and professional development advancers highlights the complex skillset of MS nurses. Conclusion: Awareness of the scope and responsibility of the MS nurse role brings understanding and structure to modern MS care. Additionally, this may improve collaborations, relationships and acknowledgement of the role of the MS nurse among healthcare professionals, patients and the wider MS community.
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