Abstract

ABSTRACT Purpose: Family-centred neonatal care views parents and child as a unit, and aims to support each family on the basis of its specific needs. Good communication can increase parents’ satisfaction and reduce tension, and is necessary to create a mutual trustful relation, but is influenced by language barriers. We aimed to describe communication between neonatal health care professionals and parents in the presence of language barriers. Methods: A field study using a hermeneutic lifeworld approach, participative observation, and interviews with parents and health care professionals. Results: The main theme, endeavouring to understand the meaning behind the words, comprised three themes. Wanting to speak for oneself meant that parents wanted to speak for themselves or call on a friend or multilingual health care professionals, in contrast to the health care professionals wish to use an interpreter. Being aware of cultural keys meant that some wards had access to a “cultural broker” to assist health care professionals and parents with both language translation and understanding of the Swedish health care environment. Understanding one another in the employees’ arena reflected varying language skills among health care professionals. The health care professionals had the power to decide the level of access to communication, and decided both the intensity and the frequency of the conversations. Conclusions: Health care professionals preferred to use an interpreter when communicating with parents, while parents wished to be independent and speak for themselves. If an interpreter was used, parents preferred this to be a friend or health care professionals; this option was less popular among health care professionals.

Highlights

  • Family-centred care on the neonatal ward views parents and child as a single unit, and aims to support each family on the basis of its own specific needs

  • Health care professionals realized that families from a different background were all unique, that people differed in their adherence to cultural norms, and that care needed to be tailored to the individual (Hendson, Reis, & Nicholas, 2015)

  • The health care professionals in this study preferred to communicate with parents with the aid of an interpreter, but the parents wished to be independent of interpreters and speak for themselves

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Summary

Introduction

Family-centred care on the neonatal ward views parents and child as a single unit, and aims to support each family on the basis of its own specific needs. Health care professionals in a Swedish study experienced cultural differences as challenging, and this made it hard for them to comprehend the wishes of families; for instance, that the spokesperson for the family was someone who visited the ward solely in order to make decisions regarding the care and treatment of the child (Patriksson, Nilsson, Berg, & Wigert, 2017). The parents experienced a feeling of shame and embarrassment due to the perception of their age or being unmarried during pregnancy. They described perceived discrimination from prenatal care providers (Ayers et al, 2018)

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