Computer-based interventions for stroke survivors: A systematic review.

  • Abstract
  • Literature Map
  • Similar Papers
Abstract
Translate article icon Translate Article Star icon
Take notes icon Take Notes

Review question/objectives This systematic review will be undertaken to answer the following review question: ‘What is the effectiveness of computer-based interventions in enhancing outcomes of stroke survivors?’ The primary objectives of this systematic review are: To present the best available research evidence pertaining to the effectiveness of computer-based interventions in optimising stroke survivors' physical and psychosocial outcomes. To determine the effectiveness of computer-based interventions in improving knowledge and self-care self-efficacy among stroke survivors. The secondary objectives are: To determine the effectiveness of computer-based interventions in enhancing stroke survivors' satisfaction with care provided. To determine the effectiveness of computer-based interventions in reducing health services utilisation among stroke survivors. The specific review questions to be addressed are: What is the effectiveness of computer-based interventions in enhancing stroke survivors' physical outcomes (for example, functional ability) and psychosocial outcomes (including depression, self-esteem, social participation, and quality of life)? What is the effectiveness of computer-based interventions in improving knowledge and self-care self-efficacy among stroke survivors? What is the effectiveness of computer-based interventions in enhancing stroke survivors' satisfaction with care provided? What is the effectiveness of computer-based interventions in reducing stroke survivors' health services utilisation? What is the effectiveness of different formats of computer-based interventions (for example: delivered via DVD/CD-ROM, internet-based, or computer programmes) on outcomes for stroke survivors? What is the effectiveness of computer-based interventions compared with usual care (for example: education using leaflet, group education, one-to-one teaching, face-to-face education led by lay leaders) on outcomes for stroke survivors? Background Stroke is the second leading cause of death globally.1 According to the World Health Organization, stroke accounts for about 5.7 million deaths worldwide, which constitutes 9.9% of all deaths in 2005.1 Although the mortality rate declined from 44.8% to 14.7% from 1997 to 2007, there are still about 795,000 people who experience a new or recurrent stroke each year.2 The number of people affected by stroke is estimated to continue to surge as the population ages.3 Stroke is also one of the leading causes of disability. Survivors of stroke are often left with different degrees of limitation in physical functioning such as hemiplegia.4 Negative consequences such as depression, restricted social functioning or loss of productivity may also result during the rehabilitation or recovery phases that lead to compromised quality of life.5–7 Post-stroke recovery is often long-term and multi-faceted, comprising physical, psychological and social aspects.8,9 Difficulties in managing their conditions post-stroke, such as coping with physical disabilities, psychosocial adaptation, community reintegration, adherence to medication and lifestyle changes, were often encountered by stroke survivors especially after being discharged to the community when healthcare professionals were not always immediately available.10–13 Provision of adequate information to stroke survivors is crucial during stroke rehabilitation and recovery. Effective information provision is not only associated with improvement in stroke knowledge and depressive moods, and increased patient satisfaction, but also better management of stroke survivors' conditions in daily life.14,15 The types of information that the stroke survivors regarded as important include medical issues, consequences of stroke, experiences of other stroke survivors, home recovery, sexuality and recreation.16 National guidelines recommended that the information offered should be individualised using appropriate communication formats, and be available at different stages of the recovery process. Opportunities for clarification or regular reinforcement of the information provided would be an advantage.14,17 However, despite numerous educational programmes or strategies examined to deliver information to stroke survivors, a systematic review evaluating the effectiveness of different information provision found that the use of booklets, leaflets or information packs were not associated with improvement in stroke survivors' knowledge of stroke, mood changes, perceived health status or quality of life.18 The time spent on providing information to stroke survivors was as low as 17.5% of the total amount of time the healthcare professionals spent on communication with the patients. Patients with aphasia in particular were offered the information in comparatively shorter time and with fewer topics.18 Furthermore, barriers to effective information provision to enhance stroke outcomes include limited availability of the information or information not being tailored to meet the patients' needs.17 Newer and innovative methods to deliver information to stroke survivors are warranted to enhance its accessibility and effectiveness on improving stroke care outcomes. Computer-based interventions, delivered via DVD/CD-ROM, internet-based, or computer programmes, have well-known advantages in providing an individualised learning environment with 24-hour convenient access to information. Features including graphics, audios, and videos can be incorporated to enhance the quality of educational materials, and to facilitate learning and promote understanding. Furthermore, they are characterised by enabling users to repeat, interrupt and resume their learning at will without being limited by other learners' learning pace.19 Computer-based interventions have been widely adopted as a useful adjunct to conventional health education for chronic diseases such as diabetes mellitus, resulting in positive outcomes.20 A review of the literature indicates that the application of computer-based interventions for stroke survivors is receiving increasing attention in recent years. A pilot study of seven stroke survivors and carers reported that a newly developed website focusing on stroke rehabilitation was easy to use and valuable in content. The participants suggested using larger fonts and darker colours for easier viewing.21 A randomised controlled trial evaluated the effectiveness of providing 133 stroke patients with computer-generated tailored written information.22 The results showed that the stroke patients were not only satisfied with the content and presentation of the information, but also found the tailored information more effective in fulfilling their information needs. However, no effect was found on their knowledge about stroke, self-efficacy, depression, or perceived health status.22 On the contrary, another randomised controlled trial which examined the use of an individualised computer program to deliver health education for 65 patients with transient ischaemic attack and minor stroke found no long term effects on enhancing knowledge of stroke.23 Stroke survivors may have limitations in physical functioning such as hemiplegia or aphasia. With the advent of information technology, modifications or alternatives in computer access such as voice control have been successful in facilitating stroke survivors' use of computers.24 It is clear from the literature that computer-based interventions are potentially beneficial to stroke survivors. A preliminary search of the Joanna Briggs Institute Library of Systematic Reviews, JBI COnNECT+, Cochrane Library, Medline, CINAHL, and DARE and PROSPERO databases indicate that there are no systematic review reports on this topic either published or underway. This systematic review will be undertaken to evaluate the effectiveness of computer-based interventions in enhancing stroke survivors' physical and psychosocial outcomes, improving knowledge and self-care self-efficacy, enhancing satisfaction with care, and reducing health services utilisation. Significance of the review Effective provision of information and care to stroke survivors is crucial to enhance the outcomes of stroke recovery. The results of this systematic review will provide vital information to clinicians and stakeholders to assist with decision-making about the use of computer-based interventions in clinical and community settings. Inclusion criteria Types of participants This review will consider studies that included adults aged 18 years or above who had had a first-ever or recurrent stroke, or are stroke survivors in the acute, rehabilitation or community settings, regardless of gender or ethnicity. The standard WHO stroke definition will be followed, that is, ‘a focal neurological impairment of sudden onset, and lasting more than 24 hours, and of presumed vascular origin’.25 (p.1-4) There are three major stroke subgroups, namely, ischaemic stroke, intracerebral haemorrhage and subarachnoid haemorrhage.25 We will exclude studies with participants who have transient ischaemic attack, subdural haemorrhage and epidural haemorrhage, as these are excluded from the standard WHO stroke definition. Types of interventions This review will consider computer-based interventions for adult stroke survivors. For the purpose of this review, the computer applications employed in the computer-based interventions include the use of DVD, CD-ROM, website, telehealth/telemedicine/telenursing/telecare, or other computer programme. The formats of information delivery in terms of texts, graphics, videos, discussion forums, interactive games or other means delivered via the computer applications will be included. Computer-based interventions delivered by healthcare professionals, trained voluntary stroke survivors, peers, or volunteers will be included. Types of comparisons Foreseen comparisons include: Comparison between computer-based interventions vs. usual care. For example, computer-based interventions vs. education using leaflet vs. group education vs. one-to-one teaching vs. face-to-face education led by lay leaders vs. other educational interventions for stroke survivors. Comparison between different formats of computer-based interventions. For example, interventions delivered via DVD vs CD-ROM vs website vs telehealth/telemedicine/telenursing/telecare vs computer programme. Types of outcomes This review will consider studies that include the following outcome measures: The primary outcomes of interest will include: Physical outcome: Functional ability is operationally defined as the degree of independence of a patient has in performing the various self-care and mobility activities of daily living tasks.26 Outcome measures include Barthel Index, Modified Barthel Index, and Functional Independence Measure. Psychosocial outcomes: Depression is operationally defined as having depressive symptoms of dysphoric mood, withdrawal, apathy, lack of vigour, hopelessness, cognitive impairment, and anxiety,27 Outcome measures include self-reported measures such as Geriatric Depression Scales (GDS-30, GDS-SF and GDS-4), Hospital and Depression Scale, and Center for Epidemiologic Studies Depression Scale. Self-esteem is operationally defined as self perceived worthiness or inadequacy, confidence about the appearance and body image, as well as the evaluation people make about their relationships with others in the various roles in their lives.28 Outcome measures include, but are not limited to, State Self-Esteem Scale and Rosenberg Self-Esteem Scale. Social participation is operationally defined as the level of participation in society that is possible when there is disability resulting from a health condition.29 Outcome measures include Frenchay Activities Index and London Handicap Scale. Quality of life would be assessed using generic or disease-specific quality of life instruments such as Stroke-Specific Quality of Life Scale (SS-QoL, and SS-QoL-12). Knowledge of stroke care. This would be measured by using knowledge tests assessing knowledge of risk factors, symptoms, treatments, information resources, and self-care management, and self-care behaviours. Self-care self-efficacy is operationally defined as stroke survivors' self-efficacy in performing self-care tasks during stroke recovery. Outcome measure includes Stroke Self-Care Self-Efficacy Questionnaire. The secondary outcomes of interest will include: User satisfaction, which is defined as the satisfaction of users with the computer-based interventions in terms of their usefulness, acceptability, ease of use, and their level of confidence in using the computer-based interventions. This would be assessed by using self-reported measures such as Computer Use Satisfaction Scale. Health services utilisation will be determined by number of emergency department visits, unplanned visits of an urgent nature to a hospital, and hospital re-admissions. Types of studies All randomised controlled trials (RCTs) comparing the effectiveness of computer-based interventions for stroke survivors will be considered for inclusion in this review. In the absence of RCTs or where insufficient RCTs were identified, other research designs including quasi-experimental, non-randomised controlled trials, before and after studies, prospective and retrospective cohort studies, case control studies and analytical cross sectional studies will be included. Exclusion criteria Studies will be excluded from the review if they: Were single case reports, narrative reports, literature reviews, systematic reviews, clinical guidelines, protocols, editorials, or expert opinion articles; Involved caregivers in the delivery of computer-based interventions, where data on caregivers was not reported separately from data on stroke survivors. Search strategy The search strategy will aim to obtain both published and unpublished studies in English and Chinese using a three-step approach. Firstly, the electronic databases will be searched to identify key words used in the titles and abstracts. Secondly, a more extensive search of the databases from inception to October 2012 using the detailed search strategies will be performed to identify potential articles for inclusion into the review. The search strategies will include the keywords, index terms and matched subject headings that are specific to each database. Thirdly, a hand searching of other sources of studies will be performed to identify studies or additional relevant source materials that are not located through the search strategies. It will include a manual search of relevant conference proceedings and journals, including Stroke, Disability and Rehabilitation, International Journal of Stroke, and Neurorehabilitation and Neural Repair. Postgraduate and doctoral dissertations will be searched for additional literature. An online search of databases and websites such as Google Scholar will also be performed to identify research studies relevant to the field of interest. Furthermore, the reference lists and bibliographies of all retrieved articles from all types of search will be screened to reveal additional relevant studies. The databases to be searched include: Articles published in English The electronic bibliographic databases to be searched will include: MEDLINE, CINAHL PLUS, EMBASE, Cochrane Central Register of Controlled Trials, All EBM Reviews, EBSCOhost, Health and Medical Complete, Health Sciences, ProQuest Dissertations & Theses, ISI Web of Science, Academic OneFile, Bandolier - Evidence Based Health Care, SCOPUS, Scirus.com, BioMed Central, and Centre for Reviews and Dissemination (CRD). Articles published in Chinese Electronic databases to be searched for primary publications written in Chinese will include: WanFang Data, China Journal Net, Chinese Biomedical Literature Database, Chinese Medical Current Contents, Hong Kong Index to Chinese Periodical Literature, Chinese Electronic Periodical Services, Chinese Electronic Theses & Dissertations Service, and Taiwan Electronic Periodical Services. The Chinese search terms will be based on the terminology used in Taiwan and China. Grey literature The databases to be searched for grey literature or unpublished studies will include: Dissertation Abstracts International, Digital Dissertations, Index to Theses, MEDNAR, Althealth Watch, Netting the Evidence, Lancashire Care Library and Information Service, Grey Literature Report (via The New York Academy of Medicine), National Library of Medicine Gateway, The Networked Digital Library of Theses and Dissertations, Academic Archive On-line, and Agency for Healthcare Research and Quality. The initial keywords to be searched will include: stroke* or cerebro vascular accident* or cva or apople* computer* or CD* or DVD* or online* or website* or web* or tele* educat* or information* or knowledge* recover* or rehabilitat* or communit* or home* Assessment of eligibility Two reviewers will independently assess the identified studies from the search for relevance to the review based on the title and abstract. The assessment will be performed using the inclusion and exclusion criteria regarding the types of studies, participants, interventions and outcome measures of the studies (Appendix I). If a research study is considered relevant and eligible for inclusion into the review, its full text will be retrieved. If the title or abstract of a study is inconclusive, the full text will also be retrieved for further assessment. Disagreement between reviewers will be resolved via discussion. The details of eligible studies will be stored in a bibliographic software package (RefWorks). In case of duplication publications, all available data will be evaluated by comparing the authors' names, settings, participants, interventions, outcomes, data and duration of the studies. Duplicated studies will be included only once. Assessment of methodological quality The methodological quality of eligible studies will be assessed independently by two reviewers using the Joanna Briggs Institute Meta Analysis of Statistics Assessment and Review Instrument (JBI-MAStARI) critical appraisal instruments for randomised and pseudo-randomised trials (Appendix II), comparable cohort/case control studies (Appendix III), and descriptive/case series studies (Appendix IV). Kappa statistics tests will be performed to assess agreement between reviewers. Any disagreements that arise between the reviewers will be resolved by discussion. Data collection Details of the included studies will be extracted and summarised independently by one reviewer using the standardised data extraction instrument from JBI-MAStARI (Appendix V). The data extracted will include specific details about the interventions, populations, study methods and outcomes of significance to the review question and specific objectives. A second reviewer will independently check for its accuracy. Discrepancies between the reviewers will be resolved by discussion. Data synthesis The included studies will be categorised according to the types of interventions investigated, namely CD-ROMs, DVDs, websites, telehealth or computer programmes. In order to minimize the risk of errors during data entry, all results will be subject to double data entry. Analysis of outcomes will be made using intention-to-treat results where possible. For continuous data that are collected using the same scale, the mean difference and 95% confidence interval will be calculated for each included study and used as the summary measure of effect; while for continuous data collected using different scales, the standardised mean differences and their 95% confidence interval will be calculated. For dichotomous data, relative risks, odd ratios and their 95% confidence interval will be calculated and used as a summary measure of effect. The studies will be assessed for clinical heterogeneity by considering the settings, populations, interventions and outcomes. If appropriate, quantitative results of comparable studies will be pooled in statistical meta-analysis using the JBI-MAStARI. Clinical heterogeneity of the studies will be assessed by considering the settings, formats of computer-based interventions and outcomes. The statistical heterogeneity of the combined studies will be tested using the I2.I2 describes the percentage of total variation across a study that is due to heterogeneity rather than chance. A fixed effects model will be applied for pooling if there is no clinical or statistical heterogeneity; while a random effects model will be used in the absence of clinical heterogeneity but with the presence of statistical heterogeneity. If statistical pooling of results of the included studies is not appropriate or possible, the findings will be summarised in narrative form including tables and figures to aid in data presentation where appropriate. In addition, subgroup analyses will be conducted to evaluate effectiveness in the following comparisons: Computer-based interventions versus usual care; Computer-based interventions versus no intervention; Computer-based interventions in different formats. Sensitivity analyses assessing the impact of studies with high risk of bias will be performed for addressing heterogeneity. Publication bias will be evaluated graphically using a funnel plot if there are a sufficient number of included studies. Conflict of interests The reviewers of this systematic review do not have any type of conflict of interest. Acknowledgements None.

Similar Papers
  • Research Article
  • 10.1001/jamanetworkopen.2025.37951
Coherence of Stroke Survivors’ Lived Experiences and the Stroke-Specific Quality of Life Scale
  • Oct 17, 2025
  • JAMA Network Open
  • Devanshi Choksi + 14 more

Physical, behavioral, and social outcomes after stroke are determined by the complex interaction of external states (eg, mobility) and internal states (eg, emotional distress). Improving these outcomes, collectively called health-related quality of life (HRQOL), requires their accurate measurement. To identify important HRQOL constructs that are associated with poststroke recovery and assess whether the Stroke-Specific Quality of Life (SSQOL) Scale, which measures 12 physical and psychosocial outcomes, adequately captures HRQOL for survivors of stroke. This qualitative study was conducted between October 1, 2023, and December 31, 2024, at 2 US comprehensive stroke centers. Stroke survivors and caregivers participated in 2 consecutive focus group sessions: the first on physical well-being and the second on emotional well-being. All stroke survivors completed the SSQOL survey. Physical and emotional well-being in recovery after stroke. Identification of themes regarding HRQOL constructs and their coherence with the SSQOL Scale. The framework method was used for qualitative analysis, and joint displays were used to assess coherence between qualitative themes and SSQOL Scale domains. A total of 41 participants (median age, 55 years [range, 27-77 years]; 22 women [54%]) were recruited nationally; the cohort comprised 30 stroke survivors and 11 caregivers. Qualitative analysis demonstrated 5 key HRQOL constructs crucial to physical and emotional well-being in recovery. Reduced physical functioning and reduced social participation were key external states associated with recovery. Loss of independence, feelings of shame, and the fear of uncertainty were key internal states associated with HRQOL. This analysis confirms that the SSQOL Scale adequately captures the external states associated with HRQOL (reduced physical functioning and reduced social participation). However, internal states were only partially captured by SSQOL Scale. This qualitative study of lived experiences among stroke survivors and caregivers suggested that internal states shape recovery but were not fully captured in a validated, widely used HRQOL assessment, highlighting a potential gap that may be unaddressed in routine poststroke care. Future studies are required to understand which combination of validated assessments may provide more comprehensive assessments of HRQOL during poststroke recovery.

  • Research Article
  • 10.1161/str.46.suppl_1.tp124
Abstract T P124: Psychometric Properties of the Chinese Version of the Stroke Specific Quality of Life Scale in Community-Dwelling Stroke Survivors
  • Feb 1, 2015
  • Stroke
  • Suzanne H Lo + 3 more

Introduction: Health-related quality of life is a significant outcome of stroke survivors’ recovery. The 49-item English version of the Stroke Specific Quality of Life Scale (SSQOL) (Williams et al., 2009) is a stroke-specific assessment of stroke survivors’ health-related quality of life in 12 domains. However there has been no Chinese version of the scale for Chinese stroke survivors in Hong Kong. Aim: To examine the reliability and validity of the Chinese version of Stroke Specific Quality of Life Scale (SSQOL-C) in stroke survivors. Methods: SSQOL was translated into Chinese and blind back-translated by independent bilingual baccalaureate nursing students. Content validity was reviewed by an expert panel which consisted of one nurse academic, one nurse manager, three advanced practice nurses, and two registered nurses. A cross-sectional study was conducted to validate the translated version. A convenience sample of 135 adult stroke survivors were recruited from three community centres and a stroke support group in Hong Kong. Internal consistency analysis was performed. Pearson’s correlation coefficients were calculated between SSQOL-C, SF-36, and Frenchay Activities Index (FAI) to determine the convergent validity. Results: Content validity index of SSQOL-C was 0.99. SSQOL-C had high internal consistency with Cronbach’s alpha of 0.94 for the total scale, and between 0.65 and 0.90 for the 12 domains. The total SSQOL-C scores showed significant positive correlations with SF-36 physical health (r=0.58, p<0.01) and mental health (r=0.54, p<0.01) component scores, and FAI score (r=0.59, p<0.01). SSQOL-C physical subtotal scores showed significant positive correlations with SF-36 physical health (r=0.55, p<0.01) and mental health (r=0.43, p<0.01) component scores, and FAI score (r=0.54, p<0.01). SSQOL-C psychosocial subtotal scores showed significant positive correlations with SF-36 physical health (r=0.52, p<0.01) and mental health (r=0.56, p<0.01) component scores, and FAI score (r=0.56, p<0.01). Conclusion: The results showed SSQOL-C had good content and convergent validity, and reliability in Chinese stroke survivors. Further evaluation of factor structure of SSQOL-C will be conducted to determine its validity.

  • Research Article
  • 10.1161/str.54.suppl_1.wmp22
Abstract WMP22: Effects Of Visual Arts-based Interventions On Physical And Psychosocial Outcomes Among Stroke Survivors: A Systematic Review And Meta-analysis
  • Feb 1, 2023
  • Stroke
  • Mimi Wai Man Chan

Background: Visual arts-based interventions may have potential effects on post-stroke physical and psychosocial outcomes, but the current evidence is unclear. Objectives: (1)To determine the effects of visual arts-based interventions on physical and psychosocial outcomes among stroke survivors, and (2)to identify the best practice of visual arts-based interventions that have optimal effects on physical and psychosocial outcomes among stroke survivors. Methods: Seventeen databases were searched. Two reviewers independently screened for the eligible studies, appraised methodological quality assessment, and extracted data. Methodological quality was assessed using the revised Cochrane risk of bias tool for randomised trials. Meta-analysis was conducted using Review Manager 5.4, and narrative synthesis was performed if there was insufficient data for meta-analysis. Grading of Recommendations Assessment, Development and Evaluation was adopted to assess the certainty of evidence. Results: Seven studies were included in this review. The pooled results suggested that visual arts-based interventions had significant effects on activities of daily living (SMD: 0.96, 95%CI: 0.24 to 1.69, p =0.009, I 2 =87%), upper limb function (SMD: 0.83, 95%CI: 0.42 to 1.24, p <0.0001; I 2 =6%), and depressive symptoms (SMD: -1.14, 95%CI: -1.67 to -0.61, p <0.0001, I 2 =70%). While the effect on hand function (SMD: 0.47, 95% CI: -0.43 to 1.37, p =0.31; I 2 =82%) and anxiety (SMD: -0.80, 95%CI: -1.71 to 0.11, p =0.08; I 2 =86%) were non-significant. Narrative synthesis showed that the effects of visual arts-based intervention on self-efficacy, social participation, and quality of life were uncertain. This review also found that five non-visual art activities with education, task orientation, sharing, feedback, and support as parts of the component of visual arts-based interventions might contribute to the benefits of physical and psychosocial outcomes after stroke. Conclusion: This review found that stroke survivors may benefit from visual arts-based interventions to improve physical and psychosocial outcomes. However, the quality of evidence was relatively low, further rigorous randomised controlled trials are recommended to strengthen the current evidence.

  • Research Article
  • 10.1093/jbcr/iraf052
Physical and Psychosocial Outcome Comparisons in Similar Groups of Pediatric Burn Patients in the United States and Mexico: A National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study.
  • Apr 20, 2025
  • Journal of burn care & research : official publication of the American Burn Association
  • Alexander Kowalske + 5 more

Pediatric massive burn survivors experience significant impairment in long-term physical function and psychosocial distress. Pediatric patients from the United States and Mexico with major burns likely receive similar care during the initial hospitalization given that many U.S. burn centers treat children with injuries from Mexico. However, follow-up care may differ, possibly affecting physical and psychosocial outcomes. This retrospective cohort study investigated differences in psychological and physical outcomes between pediatric burn patients residing in the United States and those residing in Mexico. Analysis included 100 patients, aged 8-17 years, residents of the United States or Mexico, who were hospitalized for burn injuries between 2015 and 2023 and enrolled in the Burn Model System database. Patient-Reported Outcomes Measures Information System measures of physical and psychological functioning were analyzed. Using univariate analyses, there was a significant difference in severity of burns, with the patients from Mexico having a greater total surface area of burn and an increased likelihood of amputation. Differences in the mechanism of burn, length of hospital stay, and ventilator days were not statistically significant when controlled for TBSA. Linear regression analyses examining the association between physical outcomes and country of residence (controlling for age, sex, TBSA, etiology of burn, and amputation) showed a significant difference in physical function outcomes at 6 months (P = .012) but no difference in fatigue, pain interference, or pain intensity. Analysis of psychosocial outcomes showed no significant difference in anger, depression, anxiety, or peer relationships at 6 months.

  • Research Article
  • Cite Count Icon 27
  • 10.1111/j.1365-2702.2010.03317.x
Depression among Chinese stroke survivors six months after discharge from a rehabilitation hospital
  • Oct 11, 2010
  • Journal of Clinical Nursing
  • Janita P‐C Chau + 6 more

The primary aim was to examine the prevalence of poststroke depression in Chinese stroke survivors six months after discharge from a rehabilitation hospital. A second aim was to determine whether six-month poststroke depression was associated with psychological, social and physical outcomes and demographic variables. There has been increasing recognition of the influence of depression on poststroke recovery. While some previous studies report associations between depression and social, psychological, physical and clinical outcomes, few studies had sufficient sample sizes for regression analysis thereby limiting the clinical applicability of their findings. A cross-sectional design was used. Data were collected from 124 male and 86 female stroke survivors (mean age 71.7, SD 10.2 years). The Geriatric Depression Scale was used to measure depression, the State Self-esteem Scale to measure state self-esteem, the London Handicap Scale to measure participation restriction, the Social Support Questionnaire to measure satisfaction with social support and the Modified Barthel Index to measure functional ability. Forty-two survivors (20.5%) reported mild and 33 (16.1%) reported severe depression. The presence of depression was associated with low levels of state self-esteem, social support satisfaction and functional ability. Logistic regression analysis revealed that these variables were statistically significant in predicting the probability of having depression (p < 0.05). Analyses in the present study revealed distinct patterns of correlates of depression, and the results were in agreement with prior studies that depression has a consistent positive association with physical disability, living arrangements and social support and no significant association with the different types of brain lesion. There is a need, routinely, to assess stroke survivors for depression and, where necessary, to intervene with the aim of enhancing psychological and social well-being.

  • Research Article
  • Cite Count Icon 9
  • 10.3390/ijerph18010251
Association of Health Utility Score with Physical Activity Outcomes in Stroke Survivors.
  • Dec 31, 2020
  • International journal of environmental research and public health
  • Masashi Kanai + 5 more

Health-related quality of life (HRQoL) after stroke tends to vary across studies or across stages of stroke. It is useful to use the health utility score to compare HRQoL across studies. Physical activity after stroke also tends to vary similarly. The purpose of the present study was to determine associations between the health utility score and physical activity outcomes in stroke survivors. This cross-sectional study recruited stroke survivors who could ambulate outside, free of assistance. We assessed the health utility score with the EuroQoL 5-Dimension 3-Level questionnaire. The physical activity outcomes were the number of steps taken and duration of moderate-to-vigorous physical activity (MVPA) as measured with an accelerometer. Multiple linear regression analyses were used to determine whether the physical activity outcomes were independently associated with the health utility score. Fifty patients (age: 68.0 years; 40 men, 10 women) were included. Multiple linear regression analysis showed the health utility score to be significantly associated with the number of steps taken (β = 0.304, p = 0.035) but not with MVPA. This is the first study to examine the association between the health utility score and objectively measured physical activity in stroke survivors. Promoting physical activity especially by increasing the number of steps taken might be a priority goal in improving a patient’s health utility score after stroke.

  • Research Article
  • Cite Count Icon 27
  • 10.1001/jamanetworkopen.2022.33094
Multifaceted Assessment of Functional Outcomes in Survivors of First-time Stroke
  • Sep 23, 2022
  • JAMA Network Open
  • Seyoung Shin + 14 more

Because stroke causes diverse functional deficits, understanding the long-term recovery pattern of each functional domain may inform prognosis and therapeutic strategies. To observe long-term changes in functional status and residual disability in survivors of first-time stroke. This cohort study was an interim analysis of the Korean Stroke Cohort for Functioning and Rehabilitation. Between August 2012 and May 2015, 7858 of 10 636 screened patients with first-time strokes from 9 district hospitals in Korea provided informed consent to participate. Data were analyzed from September 2021 through February 2022. First-time stroke. Study data include multifaceted face-to-face functional assessments obtained at 8 to 9 points until 60 months after stroke onset. The Korean Mini-Mental State Examination (K-MMSE), Fugl-Meyer Assessment, Functional Ambulatory Category, American Speech-Language-Hearing Association National Outcome Measurement System Swallowing Scale, and Short Korean version of the Frenchay Aphasia Screening Test were performed from 7 days to 60 months after stroke. The Korean Modified Barthel Index was measured from 3 months to 60 months after stroke. A total of 4443 patients (2649 men [59.62%]; mean [SD] age 62.13 [12.43] years) who underwent repeated functional assessments for 60 months after stroke (3508 patients with ischemic and 935 patients with hemorrhagic stroke) were included. Overall, functions plateaued between 12 and 18 months after stroke and declined after 30 months; for example, mean (SD) K-MMSE improved from 7 days (22.89 [7.89]) to 12 months (26.03 [5.48]) (P < .001), plateaued until 36 months (26.03 [5.84]), and decreased to 48 months (26.02 [5.82]) (P < .001). Interaction associations were found between time after stroke and age, stroke severity, and stroke type in functional assessment outcomes. For example, mean (SE) FMA for ages 65 years or younger vs older than 65 years was 81.64 (0.63) vs 80.69 (0.68) at 7 days and 91.28 (0.47) vs 88.46 (0.58) at 6 months (P for interaction < .001), and for IS vs HS, it was 84.46 (0.47) vs 69.02 (1.24) at 7 days and 91.20 (0.38) vs 85.51 (0.98) at 6 months (P for interaction < .001). Mean (SE) FMA was 94.39 (0.21) at 7 days and 97.57 (0.14) at 6 months for mild stroke, 44.69 (1.18) at 7 days and 70.43 (1.21) at 6 months for moderate stroke, and 13.22 (0.99) at 7 days and 48.07 (2.62) at 6 months for severe stroke (P for interaction < .001). Factors associated with activities of daily living independence at 60 months included older age (β per 1-year increase = -0.35; standard error [SE], 0.03; P < .001), male sex (β = 2.12; SE, 0.73; P = .004), and hemorrhagic stroke type (β vs ischemic stroke = 2.35; SE, 0.81; P = .004). This study found that long-term recovery patterns in multifaceted functional domains differed from one another and varied by patient age, stroke severity, and stroke type. Understanding the diversity of long-term functional recovery patterns and factors associated with these outcomes in survivors of stroke may help clinicians develop strategies for effective stroke care and rehabilitation.

  • Research Article
  • Cite Count Icon 1
  • 10.4102/sajp.v80i1.2080
Caregiver burden among informal caregivers of stroke survivors in Harare, Zimbabwe.
  • Nov 26, 2024
  • The South African journal of physiotherapy
  • Farayi Kaseke + 6 more

Stroke presents significant challenges for both survivors and caregivers, particularly in resource-limited settings like Zimbabwe. Identifying factors contributing to caregiver burden strain (CBS) is crucial to enhance support strategies. This longitudinal study identified caregiver and stroke survivor characteristics associated with CBS among caregivers in Harare, Zimbabwe. Altogether 188 stroke survivors and their caregivers participated with CBS assessed at 3 months and 12 months using the Caregivers Strain Index. Multiple linear regression was used to evaluate the association of explanatory variables with CBS. Model fit was evaluated using the Akaike's Information Criterion and R 2. Caregivers experiencing anxiety or depression showed increased CBS at 3 months (β = 2.46, p < 0.001) and 12 months (β = 2.73, p = 0.016). Work adjustments were associated with higher CBS at 3 months (β = 3.84, p < 0.001). Caregivers feeling overwhelmed had significantly higher CBS at 3 months (β = 3.36, p < 0.001). Stroke survivors' poor physical outcomes and reliance on health insurance were associated with CBS at 12 months (β = 4.34, p = 0.006). Caring for married stroke survivors was associated with reduced CBS (β = -2.83, p < 0.001). Caregiver anxiety, depression, work adjustments and poor physical and social outcomes in stroke survivors contributed to increased CBS. Targeted interventions addressing mental health and social support are essential to reduce CBS. Multifaceted interventions that address caregiver mental health and social support are vital to reduce CBS and improve outcomes in resource-constrained settings like Zimbabwe.

  • Research Article
  • Cite Count Icon 25
  • 10.11124/jbisrir-2013-1056
Theory-based self-management programs for promoting recovery in community-dwelling stroke survivors: a systematic review
  • Dec 1, 2013
  • JBI Database of Systematic Reviews and Implementation Reports
  • Suzanne H S Lo + 3 more

Background Post-stroke recovery is demanding. Increasing studies have examined the effectiveness of self-management programs for stroke survivors. However no systematic review has been conducted to summarize the effectiveness of theory-based stroke self-management programs. Objectives The aim is to present the best available research evidence about effectiveness of theory-based self-management programs on community-dwelling stroke survivors’ recovery. Inclusion criteria Types of participants All community-residing adults aged 18 years or above, and had a clinical diagnosis of stroke. Types of interventions Studies which examined effectiveness of a self-management program underpinned by a theoretical or conceptual framework for community-dwelling stroke survivors. Types of studies Randomized controlled trials. Types of outcomes Primary outcomes included health-related quality of life and self-management behaviors. Secondary outcomes included physical (activities of daily living), psychological (self-efficacy, depressive symptoms), and social outcomes (community reintegration, perceived social support). Search Strategy A three-step approach was adopted to identify all relevant published and unpublished studies in English or Chinese. Methodological quality The methodological quality of the included studies was assessed using the Joanna Briggs Institute critical appraisal checklist for experimental studies. Data Collection A standardized JBI data extraction form was used. There was no disagreement between the two reviewers on the data extraction results. Data Synthesis There were incomplete details about the number of participants and the results in two studies, which makes it impossible to perform meta-analysis. A narrative summary of the effectiveness of stroke self-management programs is presented. Results Three studies were included. The key issues of concern in methodological quality included insufficient information about random assignment, allocation concealment, reliability and validity of the measuring instruments, absence of intention-to-treat analysis, and small sample sizes. The three programs were designed based on the Stanford Chronic Disease Self-management program and were underpinned by the principles of self-efficacy. One study showed improvement in the intervention group in family and social roles three months after program completion, and work productivity at six months as measured by the Stroke Specific Quality of Life Scale (SSQOL). The intervention group also had an increased mean self-efficacy score in communicating with physicians six months after program completion. The mean changes from baseline in these variables were significantly different from the control group. No significant difference was found in time spent in aerobic exercise between the intervention and control groups at three and six months after program completion. Another study, using SSQOL, showed a significant interaction effect by treatment and time on family roles, fine motor tasks, self-care, and work productivity. However there was no significant interaction by treatment and time on self-efficacy. The third study showed improvement in quality of life, community participation, and depressive symptoms among the participants receiving the stroke self-management program, Stanford Chronic Disease Self-management program, or usual care six months after program completion. However, there was no significant difference between the groups. Conclusions There is inconclusive evidence about the effectiveness of theory-based stroke self-management programs on community-dwelling stroke survivors’ recovery. However the preliminary evidence suggests potential benefits in improving stroke survivors’ quality of life and self-efficacy.

  • Research Article
  • 10.1161/str.51.suppl_1.tp144
Abstract TP144: The Relationship Between Gait Speed and Self-Reported Quality of Life in Stroke Survivors After Treatment With a Therapeutic Gait Device
  • Feb 1, 2020
  • Stroke
  • Brianne Darcy + 7 more

Introduction: In stroke survivors, variables associated with lower quality of life (QOL) include hemiplegia, lower functional status, degree of walking ability, speed of gait, and overall walking dysfunction. The iStride TM Gait Solution, a home-use gait treatment device, has been shown to improve gait speed and other functional parameters in stroke survivors. This analysis discusses the relationship found between gait speed parameters and self-reported QOL after treatment with the iStride TM Gait Solution. Methods: Nineteen subjects were treated with the iStride TM device in their home environment for a targeted 12 sessions over four weeks. QOL was measured using the Stroke Specific Quality of Life Scale (SS-QOL) and gait speed was measured using the 10 Meter Walk Test (10MWT) at comfortable pace. Outcome measures were assessed at baseline and one-week post-treatment. Results: Results showed a statistically significant improvement from baseline to one-week follow-up for 10MWT (p=0.0001) and SS-QOL (p=0.007). The relationship between these variables appeared to be more dependent on the % improvement of gait speed and the ending gait speed being above the mean baseline speed (0.575 m/s) than the absolute improvement in gait speed. For example, subjects starting below the mean gait speed improved 23 points (14.8%) on SS-QOL (gait speed improvement = 0.22m/s) compared to 11.7 points (8%) on SS-QOL (gait speed improvement = 0.33 m/s). In addition, subjects that improved from the home ambulator category to limited community ambulator improved an average of 15.3 points (10.2%) on SS-QOL while subjects improving from limited community ambulator to full community ambulator improved only 4.8 points (4.6%) SS-QOL, despite a 0.16 m/s larger gait speed improvement. Conclusions: The results of this analysis indicate that larger gains in QOL may be achieved by focusing on patients reaching a gait speed above approximately 0.575 m/s. Our findings also support the importance of helping home ambulator stroke survivors achieve limited community ambulator status. These findings may guide clinicians who desire to improve the QOL of their patients to select effective treatment methods targeting gait speed improvement.

  • Research Article
  • Cite Count Icon 43
  • 10.1016/j.ijnurstu.2021.104001
Effects of peer support interventions on physical and psychosocial outcomes among stroke survivors: A systematic review and meta-analysis
  • Jun 13, 2021
  • International journal of nursing studies
  • Xiaojuan Wan + 3 more

Effects of peer support interventions on physical and psychosocial outcomes among stroke survivors: A systematic review and meta-analysis

  • Research Article
  • Cite Count Icon 3
  • 10.1177/0269215517698736
An investigation of the psychometric properties of the Chinese (Cantonese) version of Subjective Index of Physical and Social Outcome (SIPSO)
  • Mar 27, 2017
  • Clinical Rehabilitation
  • Patrick Wh Kwong + 2 more

Objective: The objectives of this study were 1) to translate and make cultural adaptations to the English version of the SIPSO questionnaire to create a Chinese (Cantonese) version, 2) evaluate the internal consistency, test-retest reliability the C-SIPSO questionnaire, and 3) compare the SIPSO-C scores of stroke survivors with different demographic characteristics to establish the discriminant validity of the questionnaire Design: Translation of questionnaire, cross sectional study. Setting: University-based clinical research laboratory. Subjects Community-dwelling chronic stroke survivors. Interventions: Not applicable. Main measures: Subjective Index of Physical and Social Outcome, Geriatric Depression Scale, 10-metre Walk test. Results: Two bilingual professional translators translated the SIPSO questionnaire independently. An expert panel comprising five registered physiotherapists verified the content validity of the final version (C-SIPSO). C-SIPSO demonstrated good internal consistency (Cronbach’s α = 0.83) and excellent test-retest reliability (ICC3,1 = 0.866) in ninety-two community dwelling chronic stroke survivors. Stroke survivors scored higher than 10 in the Geriatric Depression Scale (U = 555.0, P < 0.001) and with the comfortable walking speed lower than 0.8ms–1 (U = 726.5; P = 0.012) scored significantly lower on SIPSO-C. Conclusion: SIPSO-C is a reliable instrument that can be used to measure the level of community integration in community-dwelling stroke survivors in Hong Kong and southern China. Stroke survivors who were at high risk of minor depression and with limited community ambulation ability demonstrated a lower level of community integration as measured with SIPSO-C

  • Research Article
  • Cite Count Icon 16
  • 10.1080/09638288.2021.1913245
Effectiveness of information and communications technology interventions for stroke survivors and their support people: a systematic review
  • Apr 27, 2021
  • Disability and Rehabilitation
  • Megan Freund + 7 more

Purpose To examine the effectiveness of self-directed, off-the-shelf information and communications technology (ICT)-based interventions in improving the quality of life, physical and psychosocial outcomes of community-dwelling stroke survivors and their support persons (SP). Methods Medline, EMBASE, CINAHL and Cochrane databases were searched (2006–19th June 2020) for randomized controlled trials, controlled trials, controlled before and after studies, or interrupted time series studies that met the eligibility criteria. The quality of included studies was assessed. Interventions effectiveness was narratively synthesized, as was participant adherence and acceptability. Results Seventeen studies were eligible. Three studies were rated as low risk of bias across all methodological review criteria. Nine studies reported on interventions delivered using self-directed computer programs, two studies utilized internet or web-based support programs and six studies used mobile phone interventions. Few studies reported on intervention acceptability or adherence. Those that did generally reported good acceptability, although adherence was variable. Fifteen studies reported significant positive effects for at least one outcome examined including stroke-specific outcomes, physical outcomes, behavioural outcomes and health service use. No studies found an effect for psychosocial wellbeing. Conclusion ICT-based interventions are likely to provide benefit to stroke survivors and their SPs. However, there is a need for further robustly designed intervention studies that include larger sample sizes, longer follow-up, and outcomes for SPs. Implications for Rehabilitation ICT-based interventions with minimal clinician supervision are likely to provide some benefits to stroke survivors and their SPs. There is insufficient evidence to allow recommendations to rehabilitation professionals regarding the type, length and intensity of ICT-based interventions for specific targeted outcomes. Rehabilitation professionals should use professional judgement prior to recommending ICT-based interventions to stroke survivors and their SPs.

  • Research Article
  • Cite Count Icon 1
  • 10.1186/s12955-023-02092-3
Cross-cultural translation, adaptation, and validation of the stroke-specific quality of life (SSQOL) scale 2.0 into Amharic language
  • Jan 23, 2023
  • Health and Quality of Life Outcomes
  • Dechasa Imiru Wayessa + 6 more

BackgroundThe stroke-specific quality of life 2.0 (SSQOL 2.0) scale is a valid, reliable instrument which has been widely used as a patients reported outcome measure among stroke survivors. However, the SSQOL scale has not been validated and used in any Ethiopian language. This study aimed to translate, culturally adapt, and test the psychometric properties of the SSQOL scale 2.0 in Amharic, which is the official and working language with about 34 million (23%) speakers in Ethiopia.MethodsThe adapted English version of the SSQOL 2.0 scale was translated into Amharic and then back-translated to English. An expert committee translated and created a final Amharic version of SSQOL (SSQOL-AM) scale. Pre-field testing (pilot and cognitive debriefing) was conducted with 15 post-stroke subjects. The SSQOL-Am was administered to 245 stroke survivors from four referral hospitals to determine the psychometric properties. Cronbach’s alpha and Intra-class correlation coefficient were used to calculate the internal consistency and test–retest reliability, spearman’s correlation for the convergent validity of the SSQOL-Am scale. The Standard Error of Measurement (SEM), Minimum Detectable Change (MDC), Bland Altman Limit of Agreement (LOA), Confirmatory Factor Analysis, and Exploratory Factor Analysis were also determined.ResultsThe SSQOL-Am demonstrated excellent test–retest reliability (ICC = 0.93), internal consistency (Cronbach’s alpha = 0.96), SEM 0.857, MDC 1.94, and good LOA. As postulated, the mobility domain of the tool demonstrated a significantly strong correlation with the physical function domain of the SF-36 (rho = 0.70, p < 0.001).ConclusionsThe SSQOL-Am is a valid and reliable outcome measure. The tool can be used in both clinical practice and research purposes with Amharic speaking post-stroke survivors.

  • Research Article
  • Cite Count Icon 6
  • 10.1097/gme.0000000000002020
Potential effects of virtual interventions for menopause management: a systematic review.
  • Aug 9, 2022
  • Menopause
  • Ping Zou + 5 more

Menopausal women are one of the fastest growing demographic groups globally. Virtual interventions have emerged as alternate avenues for menopausal women to manage and cope with their symptoms. The purpose of this review is to summarize existing research on the potential effects of virtual interventions for menopause management. This systematic review was written in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. MEDLINE, PsychINFO, CINAHL, AgeLine, ERIC, ProQuest, Nursing and Allied Health Database, PsychARTICLES, and Sociology Database were used for literature search and searched from conception to December 2021. Original studies, including randomized controlled trials and quasi-experimental studies, were included if they evaluated a virtual intervention for menopause management and investigated the effects of these interventions on physical and psychosocial outcomes and/or the feasibility of these interventions among menopausal women. Included studies were published in peer-reviewed journals and assessed for quality using the Critical Appraisal Skills Program Checklists. A total of 16 articles were included in this review. Virtual interventions have the potential to improve physical health outcomes including body weight/body mass index/waist circumference, pain, blood pressure, and cholesterol. However, conflicting results were identified for the outcomes of vasomotor and endocrine symptoms, sleep, and sexual functioning. Virtual interventions might also improve psychosocial outcomes, including knowledge and patient-physician communication, although conflicting results were again identified for treatment decision-making ability, quality of life, and anxiety and depression. Virtual interventions were feasible in terms of being usable and cost-effective, and eliciting satisfaction and compliance among menopausal women. Virtual interventions might have the potential to improve the physical and psychosocial health outcomes of menopausal women, although some conflicting findings arose. Future studies should focus on including diverse menopausal women and ethnic minorities, conducting research within low- to middle-income countries and communities, further exploring intervention design to incorporate features that are age and culture sensitive, and conducting full randomized controlled trials to evaluate the effects of the interventions.

Save Icon
Up Arrow
Open/Close
  • Ask R Discovery Star icon
  • Chat PDF Star icon

AI summaries and top papers from 250M+ research sources.