Community reintegration post-stroke in New Zealand: understanding the experiences of stroke survivors in the lower South Island

Abstract

Purpose Optimal community reintegration is a key rehabilitation outcome post-stroke. This concept has been investigated in many countries but not qualitatively in New Zealand. We explored perceptions about community reintegration of stroke survivors living in southern New Zealand. Method Qualitative interviews were used to collect data. Recruitment was via local stroke clubs, inviting adult stroke survivors (stroke duration > six months, any severity or type) living in the lower South Island. Data were analysed using the General Inductive Approach. Results Eight stroke survivors (two female, six males; age range 50–80 years, mean 66 years (SD = 12); mean time since stroke 6.5 (SD = 4) years) participated. Participants’ perceptions of what is integral to reintegration into their community were shaped by four themes, namely: (1) personal relationships, (2) re-establishing normality (old and new), (3) purpose in life, and (4) independence. Conclusions Stroke survivors in New Zealand hold many similar perceptions about optimal community reintegration with those living elsewhere. Key to successful community reintegration, irrespective of geography, culture and ethnicity, appears to be involvement in meaningful activities, and reduced reliance on others whilst maintaining or developing good social relationships. These fundamental components are then contextually nuanced by what is meaningful and important to the individual. IMPLICATIONS FOR REHABILITATION Optimal community reintegration post-stroke is arguably the key goal of rehabilitation, and thus should be enabled and measured. To optimise community reintegration post-stroke, rehabilitation should focus on enabling stroke survivors’ social relationships, independent community mobility, and engagement in meaningful activities. Optimal community reintegration post-stroke is however contextual. Rehabilitation professionals must understand what each patient considers successful community reintegration to be for them and tailor their rehabilitation accordingly.