Commentary to “A patient- and parent-centered approach to urinary and fecal incontinence in children and adolescents with spina bifida: understanding experiences in the context of other competing care issues”

Abstract

The utilization of a qualitative research approach integrated with human centered design methods in understanding the sequel of incontinence secondary to spina bifida (SB) represents a novel approach to treatment. The use of mind, challenge and experience mapping is intriguing and “shines light’ on connections which may otherwise have gone unnoticed. A patient- and parent-centered approach to urinary and fecal incontinence in children and adolescents with spina bifida: understanding experiences in the context of other competing care issuesJournal of Pediatric UrologyPreviewDespite significant and known challenges to urinary and fecal incontinence (UI and FI, respectively) among children with spina bifida (SB) and their families, few studies have identified patient-centered measures and approaches to assessing them. This study represents the first stage of a larger study to develop a patient-centered goal-setting tool to guide incontinence management (Figure). Our aim was to understand patient experiences of UI and FI, and what goals should be included in the tool. Full-Text PDF