Abstract

Pediatric Blood & CancerEarly View e30487 LETTER TO THE EDITOR Comment on: Infertility and treatment-seeking practices among females and males with sickle cell disease in the Sickle Cell Disease Implementation Consortium registry Susan Creary, Corresponding Author Susan Creary [email protected] orcid.org/0000-0002-4730-8139 Division of Heme/Onc/BMT and Center for Child Health Equity and Outcomes Research, Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, Ohio, USA Correspondence Susan Creary, Division of Heme/Onc/BMT and Center for Child Health Equity and Outcomes Research, Abigail Wexner Research Institute at Nationwide Children's Hospital, 700 Children's Dr, Columbus, OH 43205, USA. Email: [email protected]Search for more papers by this authorLydia H. Pecker, Lydia H. Pecker orcid.org/0000-0002-8371-9752 Division of Hematology, Department of Medicine and Department of Gynecology and Obstetrics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USASearch for more papers by this authorGwendolyn P. Quinn, Gwendolyn P. Quinn Department of OB-GYN, Division of Medical Ethics Grossman School of Medicine, New York University, New York, New York, USASearch for more papers by this authorLeena Nahata, Leena Nahata orcid.org/0000-0003-3899-2642 Division of Endocrinology and Center for Biobehavioral Health, Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, Ohio, USASearch for more papers by this author Susan Creary, Corresponding Author Susan Creary [email protected] orcid.org/0000-0002-4730-8139 Division of Heme/Onc/BMT and Center for Child Health Equity and Outcomes Research, Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, Ohio, USA Correspondence Susan Creary, Division of Heme/Onc/BMT and Center for Child Health Equity and Outcomes Research, Abigail Wexner Research Institute at Nationwide Children's Hospital, 700 Children's Dr, Columbus, OH 43205, USA. Email: [email protected]Search for more papers by this authorLydia H. Pecker, Lydia H. Pecker orcid.org/0000-0002-8371-9752 Division of Hematology, Department of Medicine and Department of Gynecology and Obstetrics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USASearch for more papers by this authorGwendolyn P. Quinn, Gwendolyn P. Quinn Department of OB-GYN, Division of Medical Ethics Grossman School of Medicine, New York University, New York, New York, USASearch for more papers by this authorLeena Nahata, Leena Nahata orcid.org/0000-0003-3899-2642 Division of Endocrinology and Center for Biobehavioral Health, Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, Ohio, USASearch for more papers by this author First published: 08 June 2023 https://doi.org/10.1002/pbc.30487Read the full textAboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL No abstract is available for this article. REFERENCES 1Stevenson E, Tanabe P, Knisely M, et al. Infertility and treatment-seeking practices among females and males with sickle cell disease in the Sickle Cell Disease Implementation Consortium registry. Pediatr Blood Cancer. 2023; 70:e30356. https://doi.org/10.1002/pbc.30356 2Chandra A, Copen CE, Stephen EH. Infertility and impaired fecundity in the United States, 1982–2010: data from the National Survey of Family Growth. Natl Health Stat Report. 2013;(67): 1- 18. 3Pecker LH, Oteng-Ntim E, Nero A, et al. Expecting more: the case for incorporating fertility services into comprehensive sickle cell disease care. Lancet Haematol. 2023; 10(3): e225- e234. https://doi.org/10.1016/S2352-3026(22)00353-2 4Meacham LR, Pecker LH, Gee B, Mishkin A. Incorporating gonadal health counseling into pediatric care of sickle cell patients. Hematology Am Soc Hematol Educ Program. 2022; 2022(1): 442- 449. doi: https://doi.org/10.1182/hematology.2022000382 5Nahata L, Quinn GP, Strouse JJ, Creary SE. Addressing fertility in adolescent boys with sickle cell disease: emerging clinical and ethical dilemmas. Blood Adv. 2023:bloodadvances.2023010292. https://doi.org/10.1182/bloodadvances.2023010292 6Anyalechi GE, Hong J, Kreisel K, et al. Self-reported infertility and associated pelvic inflammatory disease among women of reproductive age - National Health and Nutrition Examination Survey, United States, 2013–2016. Sex Transm Dis. 2019; 46(7): 446- 451. https://doi.org/10.1097/OLQ.0000000000000996 7Louis JF, Thoma ME, Sørensen DN, et al. The prevalence of couple infertility in the United States from a male perspective: evidence from a nationally representative sample. Andrology. 2013; 1(5): 741- 748. https://doi.org/10.1111/j.2047-2927.2013.00110.x 8Kroner BL, Hankins JS, Pugh N, et al. Pregnancy outcomes with hydroxyurea use in women with sickle cell disease. Am J Hematol. 2022; 97(5): 603- 612. https://doi.org/10.1002/ajh.26495 9Radauer-Plank AC, Diesch-Furlanetto T, Schneider M, et al. Desire for biological parenthood and patient counseling on the risk of infertility among adolescents and adults with hemoglobinopathies. Pediatr Blood Cancer. 2023; 70:e30359. https://doi.org/10.1002/pbc.30359 10Nahata L, Caltabellotta NM, Ball K, O'Brien SH, Creary SE. Desire for parenthood and reproductive health knowledge in adolescents and young adults with sickle cell disease and their caregivers. Pediatr Blood Cancer. 2018; 65(2):e26829. https://doi.org/10.1002/pbc.26829 11Nahata L, Stanek CJ, Theroux CI, Olsavsky AL, Quinn GP, Creary SE. Fertility testing knowledge and attitudes in male adolescents and young adults with SCD and their caregivers: a pilot study. Blood Adv. 2022; 6(12): 3703- 3706. https://doi.org/10.1182/bloodadvances.2022007004 12Early ML, Eke AC, Gemmill A, Lanzkron S, Pecker LH. Severe maternal morbidity and mortality in sickle cell disease in the National Inpatient Sample, 2012–2018. JAMA Netw Open. 2023; 6(2):e2254552. https://doi.org/10.1001/jamanetworkopen.2022.54552 13de Montalembert M, Voskaridou E, Oevermann L, et al. Real-life experience with hydroxyurea in patients with sickle cell disease: results from the prospective ESCORT-HU cohort study. Am J Hematol. 2021; 96(10): 1223- 1231. https://doi.org/10.1002/ajh.26286 Early ViewOnline Version of Record before inclusion in an issuee30487 ReferencesRelatedInformation

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