Abstract
The COVID-19 pandemic created a globally shared stressor that saw a rise in the emphasis on mental and emotional wellbeing. However, historically, these topics were not openly discussed, leaving those struggling without professional support. One powerful tool to bridge the gap and facilitate connectedness during times of isolation is online health communities (OHCs). This study surveyed Health Union OHC members during the pandemic to determine the degree of COVID-19 concern, social isolation, and mental health distress they are facing, as well as to assess where they are receiving information about COVID-19 and what sources of support they desire. The survey was completed in six independent waves between March 2020 and April 2021, and garnered 10,177 total responses. In the United States, OHCs were utilized significantly more during peak lockdown times, and the desire for emotional and/or mental health support increased over time. Open-ended responses demonstrated a strong desire for connection and validation, which are quintessential characteristics of OHCs. Through active moderation utilizing trained moderators, OHCs can provide a powerful, intermediate and safe space where conversations about mental and emotional wellbeing can be normalized and those in need are encouraged to seek additional assistance from healthcare professionals if warranted.
Highlights
Social isolation, loneliness, and mental health distress have always been commonplace, societal stigma often means they are not openly discussed [1]
The aim of this study was to survey current Health Union online health communities (OHCs) members to determine the degree of COVID-19 concern, social isolation, and mental health distress they are facing, as well as assessing where they are receiving information about COVID-19 and what sources of support they require
Along with all of society, individuals with chronic illnesses fully experience the impacts of the COVID-19 pandemic, and are likely and are likely to seek out information early and avail themselves of risk reduction strategies
Summary
Loneliness, and mental health distress have always been commonplace, societal stigma often means they are not openly discussed [1]. The COVID-19 pandemic created a globally shared stressor that saw a rise in the emphasis on mental and emotional wellbeing. From popular icons such as Michelle Obama freely speaking about experiencing “low-grade depression” as a result of the pandemic and societal unrest in America [2], to the World Health Organization’s emphasis on increased mental health infrastructure due to an impending and critical increase in demand [3], the COVID-19 pandemic has changed the way we talk about, prioritize, and consume healthcare and services that address mental health needs. Nearly a quarter of those with symptoms of psychological distress who reported needing mental health services were not able to access them [7]. These COVID-19 impacts are far-reaching; factors such as a previous
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