Collaborative interaction points in post-discharge stroke care.

Nadia Davoody,Ingvar Krakau,Sabine Koch,Maria Hägglund

doi:10.5334/ijic.1549

Nadia Davoody, Ingvar Krakau + Show 2 more

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https://doi.org/10.5334/ijic.1549

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Abstract

Lack of appropriate electronic tools for supporting patient involvement and collaboration with care professionals is a problem in health care. Care and rehabilitation processes of post-discharge stroke patients were analysed using the concept of interaction points where patients, next-of-kin and care professionals interact and exchange information. Thirteen interviews with care professionals and five non-participatory observations were performed. Data were analysed using content analysis and modelling of interaction points in the patient journey. Patient participation and interaction patterns vary; patients requiring home care have a passive role and next-of-kin or nurses become advocates by coordinating care on behalf of the patient, whereas patients who are able to visit primary care coordinate their own care by initiating interactions. Important categories of participation include the following: participation in care planning, in monitoring risk factors and in rehabilitation planning. Designing a supportive electronic tool requires understanding the interactions and patients' activity levels at each interaction point. A tool for patients with higher activity level should support them to coordinate their own care, whereas for a less-active patient group, the tool could focus on supporting next-of-kin and care professionals in motivating, guiding and including passive patients in their care and rehabilitation processes.

Highlights

Lack of appropriate electronic tools for supporting patient involvement and collaboration with care professionals is a problem in health care
The results are divided into five sections: (1) interactions between care professionals at the primary care centre, non-home care patients and next-of-kin which are presented according to possible risk factors (Figure 3); (2) interactions between care professionals at the primary care centre, home care patients and next-ofkin, presented based on risk factors (Figure 4); (3) interactions between the neuro team, the patients and the next-of-kin, which are presented, based on the rehabilitation planning process (Figure 5); (4) information provided by care professionals at different interaction points (Tables 5 and 7); and (5) different categories, based on the result of the content analysis, are presented and analysed in relation to challenges that can be addressed in the design of electronic tools
We have focused on the current care and rehabilitation processes of post-discharge stroke patients to investigate the implications that interaction between patients, next-of-kin and care professionals might have for the design of a supportive electronic care and rehabilitation plan that aims to improve patient participation and be an alternative to existing information sources

Summary

Introduction

Lack of appropriate electronic tools for supporting patient involvement and collaboration with care professionals is a problem in health care. Methods: Care and rehabilitation processes of post-discharge stroke patients were analysed using the concept of interaction points where patients, next-of-kin and care professionals interact and exchange information. As the number of patients suffering from multiple long-term conditions such as stroke increases significantly, the involvement of patients and their next-of-kin as well as their collaborative relationship with care professionals become. Increasing patient participation for chronically ill patients and restructuring health care from the ‘traditional care’ to a ‘collaborative care’ wherein patients and care professionals share responsibility for problem-solving has long been in focus [5,12,13], there is still limited support for a collaborative relationship between patients and care professionals. Information and communication technology has been recommended as a possible solution to this problem [14,15,16,17]

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Conclusion