Abstract
Background: Research on parents of children with chronic conditions has shown that this parent group frequently suffers from psychological problems such as deteriorating life quality and stress-related disorders.Objective:The present feasibility study focuses on Health-Related Quality of Life (HRQOL) and life satisfaction of parents of children with chronic conditions.Method:The study was conducted using a repeated measures design and applied either group-based cognitive behavioural therapy (CBT; n = 10) or a group-based mindfulness programme (MF; n = 9). The study participants were wait-listed for six months.Results:The results indicate improvements for participants in both treatment groups regarding certain areas of HRQOL and life satisfaction. After eight group therapy sessions, parents in the two treatment groups significantly improved their Mental Component Summary (MCS) scores as well as their scores on the mental subscales Vitality, Social functioning, Role emotional and Mental health. In addition, some of the physical subscales, Role physical, Bodily pain and General health, showed considerable improvement for the MF group. When testing for clinical significance by comparing the samples with mean values of a norm population, the MCS scores were significantly lower at pre-measurements, but no significant differences were observed post-measurement. For the Physical component summary (PCS) scores, a significantly higher score was observed at post-measurement when compared to the norm population. Moreover, the results indicate improvement in life satisfaction regarding Spare time, Relation to child and Relation to partner.Conclusion:The study concludes that CBT and mindfulness may have a positive effect on areas of HRQOL and life satisfaction.
Highlights
When a child is diagnosed with a chronic disease and/or functional disability, the family is plunged into a crisis.1745-0179/17 2017 Bentham OpenParents in these families often worry about their child’s health and well-being and feel overwhelmed and stressed by the pressure to secure the help and support that the family is entitled to [1]
When testing for clinical significance (Table 1) by comparing the samples with mean values of a norm population, Mental Component Summary (MCS) scores were significantly lower at pre-measurements for the cognitive behavioural therapy (CBT) and MF groups, but no significant differences were observed for post-measurements
The feasibility of CBT and Mindfulness interventions for parents of children with chronic conditions were studied with a focus on health-related quality of life and life satisfaction
Summary
When a child is diagnosed with a chronic disease and/or functional disability, the family is plunged into a crisis Parents in these families often worry about their child’s health and well-being and feel overwhelmed and stressed by the pressure to secure the help and support that the family is entitled to [1]. Several studies show that these parents frequently suffer from psychological problems such as stress-related disorders, compulsive thought patterns, evasion, insecurity, despondency, fears and reduced quality of life [1 - 5]. These symptoms are overrepresented in parents of children with chronic disorders [5]. Research on parents of children with chronic conditions has shown that this parent group frequently suffers from psychological problems such as deteriorating life quality and stress-related disorders
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