Abstract

BackgroundIntensive care unit (ICU) patients undergoing transitions in care are at increased risk of adverse events and gaps in medical care. We evaluated existing patient- and family-centered transitions in care tools and identified facilitators, barriers, and implementation considerations for the application of a transitions in care bundle in critically ill adults (i.e., a collection of evidence-based patient- and family-centred tools to improve outcomes during and after transitions from the intensive care unit [ICU] to hospital ward or community).MethodsWe conducted a concurrent mixed methods (quan + QUAL) study, including stakeholders with experience in ICU transitions in care (i.e., patient/family partners, researchers, decision-makers, providers, and other knowledge-users). First, participants scored existing transitions in care tools using the modified Appraisal of Guidelines, Research and Evaluation (AGREE-II) framework. Transitions in care tools were discussed by stakeholders and either accepted, accepted with modifications, or rejected if consensus was achieved (≥70% agreement). We summarized quantitative results using frequencies and medians. Second, we conducted a qualitative analysis of participant discussions using grounded theory principles to elicit factors influencing AGREE-II scores, and to identify barriers, facilitators, and implementation considerations for the application of a transitions in care bundle.ResultsTwenty-nine stakeholders attended. Of 18 transitions in care tools evaluated, seven (39%) tools were accepted with modifications, one (6%) tool was rejected, and consensus was not reached for ten (55%) tools. Qualitative analysis found that participants’ AGREE-II rankings were influenced by: 1) language (e.g., inclusive, balance of jargon and lay language); 2) if the tool was comprehensive (i.e., could stand alone); 3) if the tool could be individualized for each patient; 4) impact to clinical workflow; and 5) how the tool was presented (e.g., brochure, video). Participants discussed implementation considerations for a patient- and family-centered transitions in care bundle: 1) delivery (e.g., tool format and timing); 2) continuity (e.g., follow-up after ICU discharge); and 3) continuous evaluation and improvement (e.g., frequency of tool use). Participants discussed existing facilitators (e.g., collaboration and co-design) and barriers (e.g., health system capacity) that would impact application of a transitions in care bundle.ConclusionsFindings will inform future research to develop a transitions in care bundle for transitions from the ICU, co-designed with patients, families, providers, researchers, decision-makers, and knowledge-users.

Highlights

  • Intensive care unit (ICU) patients undergoing transitions in care are at increased risk of adverse events and gaps in medical care

  • Findings will inform future research to develop a transitions in care bundle for transitions from the ICU, co-designed with patients, families, providers, researchers, decision-makers, and knowledge-users

  • The qualitative analysis revealed that participants reported that their decisions for AGREE-II rankings of existing transitions in care tools were based on five main areas: 1) language used; 2) if the tool was comprehensive to effectively facilitate transitions in care of critically ill adults; 3) if the tool could be individualized for a critically ill adult’s unique needs; 4) how the tool impacted workflow; and 5) how the tool was presented

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Summary

Introduction

Intensive care unit (ICU) patients undergoing transitions in care are at increased risk of adverse events and gaps in medical care. Research has demonstrated that patients undergoing transitions in care are at increased risk of adverse events [3,4,5], and often experience lapses in communication between healthcare providers and gaps in medical care [6,7,8,9]. Research has identified that patients and families face challenges during transitions from ICU, including worry and uncertainty, perceived gaps in care, and unfulfilled needs for more information [15]. Strategies to address challenges faced by stakeholders involved in transitions in care must be multimodal to address the information and psychosocial needs of patients and families, and the structural (e.g., discharge plan), and process (e.g., time of transition, communication between providers and care settings) needs of healthcare providers and organizations

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