CN20 - Opinions of palliative care patients and nurses regarding dignified care

Abstract

BackgroundDignity is an important issue for delivering high quality palliative care. This descriptive, methodological study was conducted to evaluate Turkish validity and reliability of The Patient Dignity Inventory (PDI) among palliative care patients and to explore the views of palliative care patients and nurses about dignified care. MethodsThis study was approved by Baskent University Institutional Review Board (Project No: KA17/280). Patient demographic form, Palliative Performance Scale and, Hospital Anxiety and Depression Scale (HADS) were used for data collection.Ten palliative care patients and 10 nurses were interviewed. The semi-structured, face to face interviews were recorded digitally, transcribed verbatim and analyzed. Turkish validity and reliability study of the PDI was conducted with 127 palliative care patients with advanced cancer. Face validity, factor structure, concurrent validity, internal consistency and test-retest reliability analysis were performed. ResultsCronbach’s coefficient alpha for the PDI was 0.94 and test-retest reliability was r=0.75. Concurrent validity tests demonstrated positive significant correlations between factors of PDI and HADS. Factor analysis demonstrated 5 factors accounting for 68.7% of the overall variance. The factors were labeled as symptom distress, existential distress, self-confidence, dependency and, support and care requirements. Three themes emerged through data obtained from palliative care patients: respectability, caring practices, and usefulness. Three themes emerged through data obtained from palliative care nurses: maintaining one’s respectability; barriers and recommendations; benefits of care. ConclusionsTurkish version of the PDI is a valid and reliable instrument among palliative care patients. Education may be useful for raising awareness of healthcare professionals about dignified care. Legal entity responsible for the studyThe authors. FundingHas not received any funding. DisclosureAll authors have declared no conflicts of interest.