Abstract
BackgroundPartnerships between clinicians and researchers could increase the generalizability of research findings and increase uptake of research results across populations. Yet engaging clinicians in research is challenging. Clinical Data Research Networks (CDRNs) provide access to a broad array of clinical data, patients, clinicians and health systems by building on existing health records (EHRs) to facilitate multi-site community engaged research (CEnR).MethodsA mixed-methods sequential explanatory design was employed. Sixty semi-structured interviews with clinicians from various disciplines and healthcare settings were conducted using five open-ended questions. Inductive content analysis was used to identify emerging themes in the data.ResultsWe identified the following emerging themes: 1) Research with relevance and benefits to clinics and provider’s patient population; 2) Difficulties of engaging in research with existing patient care demands; 3) Clear and continuous two-way communication about research, coordinated with provider and clinic needs; 4) Tailored compensation approaches meet provider preferences; 5) Increasing clinician awareness about Clinical Data Research Networks (CDRNs).ConclusionOur interview study provides insight into community clinician perspectives on Clinical Data Research Networks, indicating motivations and challenges to research involvement including consequences of time spent on research participation, barriers to expanding research and meaningful involvement in research governance. Findings can be used to guide the development of strategies to better engage providers in research in clinical settings, which could ultimately improve patient outcomes.
Highlights
Partnerships between clinicians and researchers could increase the generalizability of research findings and increase uptake of research results across populations
Patients are considered stakeholders serving in co-PI roles, Unertl et al BMC Health Services Research (2018) 18:568 significantly contributing to the development and management of patient-centered outcomes research (PCOR) [3]
One key approach identified through the Patient-Centered Outcomes Research Institute (PCORI) initiative was a new approach to stakeholder involvement building on the Practice Based Research Network (PBRN) concept and known as Clinical Data Research Networks (CDRNs)
Summary
Partnerships between clinicians and researchers could increase the generalizability of research findings and increase uptake of research results across populations. Clinical Data Research Networks (CDRNs) provide access to a broad array of clinical data, patients, clinicians and health systems by building on existing health records (EHRs) to facilitate multi-site community engaged research (CEnR). Authentic stakeholder involvement is critical to informed health care decisions and implementing patient-centered outcomes research, Significant stakeholder engagement begins before the initial study design, leveraging stakeholders’ interests continuously. One key approach identified through the PCORI initiative was a new approach to stakeholder involvement building on the PBRN concept and known as Clinical Data Research Networks (CDRNs). Thirteen Clinical Data Research Networks (CDRNs) were established starting in 2014 as a strategic model across healthcare delivery sites to provide access to a broad array of clinical data, built on existing electronic health records (EHRs) [4]. The CDRNs are based in multiple types of healthcare delivery sites, including academic and community-based hospitals, clinics, health plans, integrated delivery systems, and federally qualified health centers
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