Abstract

Infants cared for in a newborn intensive care unit (NICU) experience pain, parental separation, and stress that may approach toxic levels, thus are potentially traumatic. Lack of accepted clinical terminology to describe the infant experience may result in under appreciation of NICU hospitalization on infant and family outcomes. This study explored NICU clinician perceptions of the infant experience and how the terms trauma/traumatic would impact their clinical roles and practices. Semistructured focus group interviews and thematic analysis were used to describe professionals' perceptions of the infant's experience and terminology. Focus groups were organized by professional role, including NICU leadership, physicians, nurses, and ancillary providers. Six themes emerged from the qualitative analysis: at our mercy, trauma defined and redefined, and now you have broken them too, perceptions of NICU experience change over time, trauma in the NICU: whose trauma is it, and not knowing the infant and family experience. While recognizing potentially toxic infant stress levels, clinicians are reluctant to describe the NICU infant experience as traumatic. Hesitations relate to clinicians' personal concerns that they may be seen as agents of trauma and the impact for families if the NICU experience was described as traumatic by clinicians.

Highlights

  • This study explored newborn intensive care unit (NICU) clinician perceptions of the infant experience and how the terms trauma/traumatic would impact their clinical roles and practices

  • Hesitations relate to clinicians’ personal concerns that they may be seen as agents of trauma and the impact for families if the NICU experience was described as traumatic by clinicians

  • I think we all suffer from that trauma...we dream about kids...especially the sick kids...I can’t get them...get them out of my head... (MD)

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Summary

At Our Mercy

Participants described concerns that vulnerable infants in the NICU have multiple providers, are in an over-stimulating environment, are told when to eat, are touched all the time and suffer significant pain and stress. It’s like you know, this whole assault on the baby in a way. What comes to my mind is that they’re at our mercy...it’s all about what we do and how we approach the situation..., so anybody even a little bit older [than an infant] has some way to express themselves or just stand up for themselves literally. I think as we’ve sat here and kind of talked about that, that it makes perfectly good sense that that is what it is- it’s a traumatic experience- but we’ve just never defined it that way before. It’s going to impact them for a lifetime, right? Even if they don’t recognize it, it will... (Dietician)

And Now You Have Broken Them Too
Perceptions of NICU Experience Change over Time
Trauma in the NICU
Not Knowing the Infant and Family Experience
DISCUSSION
Full Text
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