Abstract
BackgroundThe French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease. The aim of this study is to assess the satisfaction and priorities of chronic patients regarding medical care, information and services and their quality of life.MethodsA cross-sectional study was conducted from February to March 2018 via the French Carenity platform. Adult patients enrolled in type 1 diabetes, heart failure or obesity communities were invited to answer an online questionnaire. A numeric scale from 0 (meaning not satisfied) to 5 was used to evaluate patients’ satisfaction. Patients’ priorities were assessed using a ranking question. Patients’ satisfaction and priorities have been combined in a matrix to identify patients’ expectations.ResultsSixty-seven respondents of each condition answered a questionnaire. The most important and least satisfactory items about medical care are availability and active listening from healthcare providers, as well as access to coordinated and multidisciplinary care. Regarding information and services, respondents mostly expect connected medical devices, in addition to lifestyle and dietary measures. As for the quality of life, respondents fear that their chronic condition will keep impacting their daily mood and ability to do physical activities.ConclusionsThis study shows that chronic patients want to be more actively involved in their care pathway. Patient training and therapeutic patient education programs could help them manage their chronic conditions within a patient-centred healthcare system.
Highlights
The French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease
8% are monitored within a specialized structure and 4% in a medical center. 12% of respondents with type 1 diabetes attend a specialized structure followed by 9% of respondents with obesity and only 4% of respondents with heart failure
The findings of the study should stimulate creative thinking of pharmaceutical and medtech industries for developing tailored solutions and services and integrating them in experimentation of new healthcare organizations. This cross-sectional study underlines the satisfaction and priorities of Carenity members affected by type 1 diabetes, obesity and heart failure regarding medical care, information and services and the impact of the chronic condition on quality of life
Summary
The French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease. Healthcare systems in developed countries were created to manage acute diseases rather than chronic conditions and are no longer suited to an environment that has radically changed due to a triple transition: demographic, epidemiologic and technologic. Active patient participation is a key factor for the successful management of chronic conditions. It requires identifying and integrating patient needs and preferences into decisions regarding health practices [5]. This study aimed to assess the needs and preferences of patients with chronic conditions. This is an essential preliminary step that will contribute to addressing patient needs and preferences through actions
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