Abstract
BackgroundThe narcolepsy severity scale (NSS) was developed to measure the severity and consequences of symptoms in patients with narcolepsy. The scale has been validated in France, though no other studies have further validated this instrument. The current study aimed to present psychometric properties and describe the score distribution of the Chinese-NSS.MethodsOne hundred twenty-two patients with narcolepsy (41 females and 81 males; mean age 26.14 ± 15.40 years) participated in the study. All patients completed the Chinese-NSS. Cronbach’s α, item-total score correlations, exploratory factor analysis (EFA), and correlations between NSS total scores and clinical or sleep parameters were then calculated.ResultsEFA yielded a three-factor model. Internal consistency was acceptable (Cronbach’sα = 0.799). The NSS total score had significant correlations with the Epworth sleepiness score (0.447), pediatric daytime sleepiness scale (0.318), the insomnia severity index (0.592), Beck depression inventory (0.593), EurQol five dimensions-utility (0.457), EurQol five dimensions -VAS (− 0.323), the sleep disturbance scale for children (0.440), the children depression inventory (0.553), and the pediatric quality of life inventory (0.555) total scores, demonstrating acceptable convergence as predicted.ConclusionsThe current study is the first validation study of the narcolepsy severity scale in an Asian population. The findings validated the Chinese-narcolepsy severity scale in a Chinese population with acceptable psychometric properties. There are minor differences between our results and those of the original study due to cultural differences.
Highlights
The narcolepsy severity scale (NSS) was developed to measure the severity and consequences of symptoms in patients with narcolepsy
There were no differences in NSS scores between the total scores of the pediatric group and the adult group (26.12 + 8.04 and 28.41 + 12.25, p > 0.05)
We found positive and significant correlations between the NSS and Epworth sleepiness score (ESS), insomnia severity index (ISI), Beck depression inventory (BDI), EurQol five dimensions (EQ-5D), Pediatric daytime sleepiness scale (PDSS), sleep disturbance scale for children (SDSC), children depression inventory (CDI), and Pediatric quality of life inventory (PedsQL)
Summary
The narcolepsy severity scale (NSS) was developed to measure the severity and consequences of symptoms in patients with narcolepsy. The current study aimed to: 1) translate and culturally adapt the NSS to the Chinese language; 2) test the preliminary validity and reliability of a version of the “Narcolepsy severity scale” (NSS) that has been translated into Chinese and adapted to evaluate the severity and consequences of symptoms in Chinese narcolepsy patients; 3) identify cut-off values to distinguish between treated and non-treated patients. This scale, which is focused on the severity of narcolepsy symptoms, is expected to contribute to the assessment of narcolepsy symptoms and changes in symptoms after treatment in Chinese narcolepsy patients
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