Abstract
Introduction: Cerebral Palsy (CP) may affect individual’s everyday life and it may have significant impact on quality of life (QOL). The objective of this study was to assess the quality of life of children with Cerebral Palsy in Nepal.Material and Methods: This is a descriptive cross sectional study that involved 42 children between 4 and 12 years of age. The Socio-demographic variables were obtained from interviews and CP related factors were obtained from medical reports. Validated CP-QOL child self-report and parent proxy version of questionnaire was used for data collection. Severity was assessed using Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication function Classification System (CFCS) and ICD-10 Classification System. Data were summarized using descriptive statistics. Kruskal Wallis and Man Whitney was used to find out association between Cerebral Palsy related factors and Quality of Life.Results: 57.1% (n=24) were between 8 and12 years of age and 42.9% (n=18) were between 4 and 8 years of age. Overall QOL was reported to be fairly good. Both the child and Caregiver gave highest score on “Social wellbeing and acceptance” and “Emotional wellbeing and self-esteem domain” and Lowest Point in “Pain and Impact of disability”. This implies that Psychosocial Quality of Life is good in children with CP. Quality of Life as reported by child was better than Quality of Life reported by Caregiver.Conclusion: Overall QOL is fairly good in children with CP. However, Pain and impact of disability impairs QOL.
Highlights
Cerebral Palsy (CP) may affect individual’s everyday life and it may have significant impact on quality of life (QOL)
The study was conducted at Self-help Group for Cerebral Palsy (SGCP), Nepal.The study population comprised of children aged 4-12 years diagnosed with CP
Specific parameters pertaining to functional capacity such as Manual Ability Classification System (MACS) and Gross Motor Function Classification System (GMFCS) may not influence the overall QOL
Summary
Cerebral Palsy (CP) may affect individual’s everyday life and it may have significant impact on quality of life (QOL). Overall QOL was reported to be fairly good Both the child and Caregiver gave highest score on “Social wellbeing and acceptance” and “Emotional wellbeing and self-esteem domain” and Lowest Point in “Pain and Impact of disability”. This implies that Psychosocial Quality of Life is good in children with CP. Cerebral Palsy is defined as the permanent non-progressive disorders of movement and posture that results in restriction of activities occurring in the developing foetal or infant brain It is the most common cause of chronic disability restricting the children to participate in their daily activities of life[1]. It is the most significant motor impairment in childhood which occurs in 2.5 children per 1000 live births[3].
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