Abstract
In Latvia’s health care sector children’s palliative care (PC) is comparatively new branch. There are relatively few scientific researches performed in PC by now. This can be explained by demographical and academic factors as well as by specific ethical problems. The Palliative Care Service at Children’s University Hospital is the only service of the kind in Latvia providing both – in-patient and home PC service for patients residing in Riga and Riga district. The service is not available to every child in all regions of Latvia. Hence, the main objective for the future would be establishing a high-quality, assessable children’s PC service system throughout the country. The specialists of the children’s PC team have launched an initial nation-wide research on quality of life of families with incurably ill children. The research on quality of life (QOL) in families with incurably ill children is essential in order to promote political decision-making in the government and in the private sector regarding health-care including development and improvement of children’s PC in Latvia. Results of the research on QOL of the families with incurably ill children will set base for improvement and perfection of service provided by PC team.
Highlights
In Latvia’s health care sector children’s palliative care (PC) is comparatively new branch
The research on quality of life (QOL) in families with incurably ill children is essential in order to promote political decision-making in the government and in the private sector regarding health-care including development and improvement of children’s PC in Latvia
Situation of family with incurably ill child is precisely described by mother A saying: “Family with incurably ill child is forced to renounce from many things: from improving living conditions, from studying and obtaining additional education, from searching for better paid job
Summary
In Latvia’s health care sector children’s palliative care (PC) is comparatively new branch. The specialists of the children’s PC team have launched an initial nation-wide research on quality of life of families with incurably ill children. The research on quality of life (QOL) in families with incurably ill children is essential in order to promote political decision-making in the government and in the private sector regarding health-care including development and improvement of children’s PC in Latvia. Results of the research on QOL of the families with incurably ill children will set base for improvement and perfection of service provided by PC team. Palliative care is active, all-embracing care about children (and their family members) with progressive chronic diseases – those for whom possibilities of radical treatment are exhausted It aims at provision of the best possible quality of life for patients and their family members. The psycho-emotional condition of the family members would improve, as the core of children’s PC is improvement of quality of life for the patient and his/her family members
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