Abstract

AimTo assess compliance with ACT standards (ACT 2004) in respect of end of life (EOL) planning for children who died from life-limiting conditions between October 2008 and March 2010 (defined...

Highlights

  • Aim To assess compliance with ACT standards (ACT 2004) in respect of end of life (EOL) planning for children who died from life-limiting conditions between October 2008 and March 2010

  • The notes of 75% children contained EOL ‘care plans’. These child and family choices were found buried among the narrative of the case notes

  • Discussions about what to do in the case of acute life-threatening event were common (75%)

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Summary

Introduction

E J Heckford1, A Beringer2 1Paediatric Palliative Medicine, University Hospital of Wales, Cardiff, UK; 2Faculty of Health and Life Sciences, University of the West of England, Bristol, UK Aim To assess compliance with ACT standards (ACT 2004) in respect of end of life (EOL) planning for children who died from life-limiting conditions between October 2008 and March 2010 (defined geographical area). A standardised data collection tool was used and eligible children were identified from Child Death Overview Panel data. Results 42 sets of National Health Service notes were reviewed, relating to 20 children.

Results
Conclusion
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